Satellite Meetings Recognised globally as the largest, patient-led rare disease policy event, the ECRD is a unique opportunity to gather key opinion decision makers in various countries to consider how EU policies and national strategies will link in the coming Read More

Networking Sessions One of the most valuable takeaways from any conference is the new relationships and contacts made through networking. Each year, the ECRD attracts hundreds of stakeholders including the rare disease patient community, academia, regulators, policy makers and healthcare Read More

Humanitarian crisis in Ukraine To discuss the sizeable challenge of meeting the complex medical needs of the rare diseases patients from Ukraine, a session specially dedicated to the Ukrainian crisis was organised on Tuesday, 28th June from 11:00 to 13:00 Read More

NEWS: Yann Le Cam of EURORDIS-Rare Diseases Europe on ECRD2020 – Register now https://youtu.be/00iYEfXxVLM The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease Read More

NEWS: Industry attendance at ECRD2020 – Who should register? The European Conference on Rare Diseases & Orphan Products (ECRD) is an opportunity for industry to come together with patients to discuss the state-of-the-art in rare disease policy, research, diagnosis, treatment Read More

NEWS: Watch recording of #ECRD2020 pre-conference webinar The pre-conference webinar took place on Thursday 23 April. It was an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy Read More

NEWS: Policymakers at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Policymakers attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More

NEWS: Latest set of speakers announced for world largest patient led rare disease conference ECRD2020 – Register Now We are delighted to announce the first set of speakers for European Conference on Rare Diseases & Orphan Products (ECRD) 2020. #ECRD2020 Read More

NEWS: Clinicians at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Clinicians attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More

NEWS: Patients at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Patients attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More