NEWS: Clinicians at ECRD2020 - Why Register?

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event.

Clinicians attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for two days of talks, discussions and sessions hearing from over 100 speakers, panellists and chairs.

Exclusive benefits for clinicians include:


  • CO-CREATE the policies and services of the future to support measureable and improved health outcomes for people living with a rare disease
  • LEARN about how care for rare diseases is organised across Europe, what are the trends, innovations and emerging models of care
  • SHARE and EXCHANGE your knowledge and experience with other fellow clinicians from all around Europe and beyond to create collaborations
  • MEET patients online from other countries and learn from their experiences
  • SHOWCASE and share your work with a wide, multi-stakeholder audience as a poster presenter or as a speaker in the open microphone plenary session
  • EXCHANGE VIEWS on technological developments that are changing the rare disease landscape and contribute to debates on the opportunities, ethical, legal and social implications in areas such as data sharing and artificial intelligence
  • LEARN about the important progress made to advocate for rare diseases as a health and human rights priority at the United Nations and international agencies
  • LEARN MORE about growing efforts to advocate for organised and integrated social support and patient-centred care at the national level
  • GAIN insight into European and national rare disease policies
  • OBTAIN CME (Continuing Medical Education) credits by attending ECRD 2020

A unique opportunity for Clinicians

ECRD’s 2020 theme “The journey of living with a rare disease in 2030” recognises that the next decade holds great potential for improvement, we all have a role to play in preparing for it. Tremendous progress has been made by the rare disease community, but vigilance and constant effort is necessary if we wish to hold on to important gains.

The health of 30 million people living with a rare disease in Europe should not be left to luck or chance. As the EU plans its future expenditure, ECRD 2020 serves as an opportunity to press the “pause button” and consider what policies we need to put in place today to prepare for a better patient journey in 2030 and beyond.

The dialogue, learning and conversations that take place during the Conference form part of the groundwork that will shape current and future rare disease policies and allow for important and innovative discussions on a national and an international level to take place.


about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.


of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives


to all stakeholders of the rare disease community.

Register now

Find out more about the Registration Categories and Fees for ECRD 2020 or download the Clinician Attendance Flyer.

Organised by:

Co-organised by:


With the support of

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EU funding logo