Detailed programme and presentations:

Below is a list of the Themes from ECRD 2020. You can find the Theme description and electronic versions of the presentations given in each Theme by clicking on the theme title to reveal the links.

Programme Committee

Programme Committee Co-chairs

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Valentina Bottarelli

Public Affairs Director & Head of European and International Advocacy, EURORDIS, Belgium

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Lene Jensen

CEO, Rare Diseases Denmark, Denmark

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Virginie Hivert

Therapeutic Development Director, EURORDIS, France

Programme Committee Members


Holm Graeßner
ORPHANET

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Andrea Ricci
ISSINOVA


Ana Rath
Director, Orphanet, France


Daria Julkowska
GGB


Jayne Spink
Rare Diseases UK

Theme Leaders


François Houÿez
Treatment Information and Access Director, Health Policy Advisor, EURORDIS, France


Virginie Hivert
Therapeutic Development Director, EURORDIS, France


Lene Jensen
CEO, Rare Diseases Denmark, Denmark


Valentina Bottarelli
Public Affairs Director & Head of European and International Advocacy, EURORDIS, Belgium


Ana Rath
Director, Orphanet, France

Outreach Commitee


François Houÿez
Treatment Information and Access Director, Health Policy Advisor, EURORDIS, France


Virginie Hivert
Therapeutic Development Director, EURORDIS, France


Lene Jensen
CEO, Rare Diseases Denmark, Denmark


Valentina Bottarelli
Public Affairs Director & Head of European and International Advocacy, EURORDIS, Belgium


Ana Rath
Director, Orphanet, France

Organised by:

EURORDIS logo

Co-organised by:

Orphanet logo

With the support of:

AFM logoEU funding logo