European Conference on Rare Diseases and Orphan Products
ECRD 2018 took place on 10-12 May 2018, at Messe Wien Congress Center, Vienna, Austria.
Streaming replay
Streaming programme
- Welcome address and opening remarks
- Keynote addresses
- Plenary welcome & introduction
- Inspirational speaker, Dr Rüdiger Krech, Director, Universal Health Coverage and Health Systems Office of the Assistant Director-General, World Health Organization
- Patient testimony, Maria Prähofer, living with MPS IVA, Morbus Morquio
- Daniela Bas, Director, Division for Social Policy and Development Department of Economic and Social Aff airs, United Nations
- Rare disease patients’ needs and goals, Lene Jensen, Chief Executive Officer, Rare Diseases Denmark
- Rare disease policy priorities for the future panel discussion
What is ECRD?
ECRD – the European Conference on Rare Diseases & Orphan Products is the largest multi-stakeholder gathering in Europe for the rare disease community covering research, development of new treatments, healthcare, social care, public health policies and support at European, national, regional and international levels.
What is on the programme?
“Rare Diseases 360° – collaborative strategies to leave no-one behind” is the overarching theme of ECRD 2018. This theme reinforces the unique quality of this foremost event for the rare disease community in Europe, bringing together and facilitating effective policy discussions between all rare disease stakeholders. It also encompasses the comprehensive range of topic areas covered at the conference and the viewpoint of rare disease patients as equal experts, representing all rare diseases, across borders.
An opportunity to:
Learn about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
Shape the future of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
Network and showcase your work to all stakeholders of the rare disease community.Organised by:
Co-organised by:
With the support of:
With thanks to the corporate partners of ECRD 2018 Vienna.
In partnership with:
With thanks to our media partners:
