LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
How can we use the lessons learned from the COVID-19 pandemic to ensure a better future for everyone living with a rare disease?
Read the article now: http://l.eurordis.org/degJ
Face to face is best! 👩⚕️
Remote consultations are a great tool for people living with a rare disease, but they can't replace all in-person health care.
Sign up for our Rare2030 webinar & explore survey findings on remote health care and ... more: http://l.eurordis.org/sebu
Share Rare Diseases International's infographic of life with a rare disease, and help raise awareness and understanding on the challenges of a rare disease throughout a lifetime: http://l.eurordis.org/YedX @rarediseasesint
From EU #HealthUnion fairytale to #CivilSociety nightmare: A tale of public ‘praise’ for Cinderella civil society while excluding her with ‘crumbs’ to live on
'Praise-crumbs' won't sustain us say NGOs, time to #BringBackOperatingGrants now ... @SKyriakidesEU
https://epha.org/healthily-ever-after/
#Resolution4Rare = addressing the challenges of people living with a rare disease and their families.
Support our call for a UN Resolution by raising awareness on social media: http://l.eurordis.org/uemG
@rarediseasesint
Help to build a world with better medicines for babies, children and young people!
Answer a short survey and let @c4c_network know how you feel about clinical research: http://l.eurordis.org/QeWZ
📸: Artem Kniaz on Unsplash
This issue includes a comprehensive review of #ECRD2020, as well as articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch #ECRD2020
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Organised by:
Co-organised by :
