LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
Shaping the future of health in the EU together is more urgent than ever. The #EU4Health coalition is urgently calling on @Europarl_EN @EU_Commission & @EUCouncil
to ACT NOW for a stronger health policy. Read/sign our joint statement: ... http://ow.ly/e4WI50zRlCH #StrongerTogether
Join us and register here for the c4c workshop in September! #PatientAdvocacy
Thank you to all patient representatives from Central & Eastern Europe countries who participated in a recent @imi_paradigm workshop to give feedback on tools being developed to support sustainable patient engagement in medicines R&D
Read more 👉 ... https://imi-paradigm.eu/cee-patient-engagement-conference-transferability-workshops-report/
We're looking for people affected by any of these #rarediseases that would like to connect with others living with the same condition. Interested? Send us an email at [email protected] or visit http://RareConnect.org
Share this image and help us ... #BreakTheIsolation!
Calling all #raredisease & rare cancer patient advocates
👉Register now for the first webinar of the EURORDIS Digital School 2020-2021 on the topic 'Helping Patient Organisations Plan and Create for Social Media Success' (18 June) ... https://us02web.zoom.us/meeting/register/tZYrdOyvqzstGNOl5aT2g96lcy4-CuI8l5kB
@castrorakel
Register now - EURORDIS will be co-hosting a webinar with @EU_Health of @EU_Commission on 9 June "The impact of #COVID19 for people living with a Rare Disease" during which we will present results from our COVID-19 survey by ERN disease grouping. Register: ... https://ec.europa.eu/health/sites/health/files/ern/docs/ev_20200609_ag_en.pdf
Download our #ECRD2020 conference poster, which examines the availability of radioligand therapy to meet the treatment needs of people with neuroendocrine neoplasms (NENs). https://hpolicy.co/RL_ECRD
Download our #ECRD2020 conference poster, which examines the availability of radioligand therapy to meet the treatment needs of people with neuroendocrine neoplasms (NENs). https://hpolicy.co/RL_ECRD
Download our #ECRD2020 conference poster, which examines the availability of radioligand therapy to meet the treatment needs of people with neuroendocrine neoplasms (NENs). https://hpolicy.co/RL_ECRD
Download our #ECRD2020 conference poster, which examines the availability of radioligand therapy to meet the treatment needs of people with neuroendocrine neoplasms (NENs). https://hpolicy.co/RL_ECRD
We agree with these very interesting thoughts on recent #ECRD2020 by our ePag @sil_aps from @afosfolipido. Meeting will never be the same again https://twitter.com/sil_aps/status/1261632016036044800
Delicious food at your doorstep only from Kipling Café! Pick your order up, or have it delivered by calling 7305220330. #nowopen #kiplingcafe #lockdownblues #foodawayfromhome #homedelivery #takeaway #ecrd2020
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