LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
Well-being means much more than just merely 'coping'. It is about a caring society, where everyone gets the support they need. This should be our new European horizon!
Let’s make sure policy makers hear your voice #ShareYourReason
... https://action.eurordis.org/ #30millionreasons
Join EURORDIS’ first Facebook Live event on COVID-19 vaccines 💉 on Thursday 20th May 6 pm CEST!
Listen to our CEO Yann Le Cam and vaccine expert Francois Houÿez in the interactive session. Get the latest information and ask your questions! ... 🙋♂️🙋♀️
The Co-Chairs of the Global Commission including our CEO, @Yann_Eurordis, Wolfram Nothaft of @TakedaPharma & Greg Moore of @Health_IT have recently shared their thoughts on how #AI may enable faster rare disease diagnosis in @medcitynews
Read more here ... 👉 https://bit.ly/3y8OGqq
📢The video 📽️of the session "How to connect patients in EU to #CutaneousLymphoma experts via ERN?" of the #CL #TopicOnFocus for Patients Organizations organized by @ERNEuroBloodNet @knowyournodes @eurordis
#CLF @LymphomeEspoir is available here: ... https://youtu.be/bdz9cEEjGuA
How strong has been the impact of the pandemic on patients organisations?
💰44% have concerns over their financial stability
📉50% had to change the organisation’s focus
Be sure to read the latest @eupatientsforum survey to learn more: ... https://www.eu-patient.eu/news/latest-epf-news/2021/impact-of-covid19-on-patients/
Yann Le Cam, Chief Executive Officer of EURORDIS-Rare Diseases Europe, shares his highlight from the EURORDIS Membership Meeting 2021 – “A community that looks out for the most vulnerable and strives for equity, respect and dignity for all!” #EMM2021
... ℹ️ https://www.eurordis.org/membership
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Organisé par :
Co-organisé par :
