LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
📢The video 📽️of the session "How to connect patients in EU to #CutaneousLymphoma experts via ERN?" of the #CL #TopicOnFocus for Patients Organizations organized by @ERNEuroBloodNet @knowyournodes @eurordis
#CLF @LymphomeEspoir is available here: ... https://youtu.be/bdz9cEEjGuA
How strong has been the impact of the pandemic on patients organisations?
💰44% have concerns over their financial stability
📉50% had to change the organisation’s focus
Be sure to read the latest @eupatientsforum survey to learn more: ... https://www.eu-patient.eu/news/latest-epf-news/2021/impact-of-covid19-on-patients/
Yann Le Cam, Chief Executive Officer of EURORDIS-Rare Diseases Europe, shares his highlight from the EURORDIS Membership Meeting 2021 – “A community that looks out for the most vulnerable and strives for equity, respect and dignity for all!” #EMM2021
... ℹ️ https://www.eurordis.org/membership
Patients are experts about their own conditions, able to contribute to shaping meaningful research, policies, and services. With our training, 📚 we make sure they know whom to address and how.
👉Join the next training of the EURORDIS Digital School! ... http://l.eurordis.org/j2S
We are looking forward to finding out who will be the next recipients of the Black Pearl Awards 2022!
🗳️Nominate your star scientist, patient advocate or volunteer contributing to the rare disease cause here: https://blackpearl.eurordis.org/nominate/
Already over😓 Always a pleasure European Membership Meeting 💜💙💚Sharing, learning, empowering - #strongertogether on our way to improving the lives of people with #RareDiseases Honour to be part of this movement #thx @eurordis #improvingLives ... #30MillionReasons #EMM2021
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
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