LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
We are looking forward to finding out who will be the next recipients of the Black Pearl Awards 2022!
🗳️Nominate your star scientist, patient advocate or volunteer contributing to the rare disease cause here: https://blackpearl.eurordis.org/nominate/
Already over😓 Always a pleasure European Membership Meeting 💜💙💚Sharing, learning, empowering - #strongertogether on our way to improving the lives of people with #RareDiseases Honour to be part of this movement #thx @eurordis #improvingLives ... #30MillionReasons #EMM2021
Ongoing EURORDIS Membership Meeting: very interesting. Congratulations !!
@eurordis @yann_eurordis @uniamofimronlus
@TVMR_CNMR
⏰Only 30 minutes left to register for the last day of the EURORDIS Membership Meeting #EMM2021
Today, we will be focusing on the tools you need to advocate during the upcoming Rare 2030 campaign.
Let’s move the rare disease agenda forward together! ... 💪http://l.eurordis.org/EMM
There are 30 million people living with a rare disease in Europe. Together, we have #30millionreasons for action on rare diseases!
Share your reason for EU policy-makers to step up to the challenge of improving the lives of people with rare diseases now.
... https://action.eurordis.org/
We are the 30 Million people asking for a EU Action Plan for Rare Diseases to
✅ Improve the quality of people living with a rare disease
✅ Extend their life expectancy
✅ Establish Europe as a world leader in #raredisease therapies
👉 ... http://l.eurordis.org/EMM #30millionreasons
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
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