Humanitarian crisis in Ukraine

To discuss the sizeable challenge of meeting the complex medical needs of the rare diseases patients from Ukraine, a session specially dedicated to the Ukrainian crisis will be organised on Tuesday, 28th June from 11:00 to 13:00 (CET) chaired by Anastasiia Saliuk, EURORDIS- Rare Diseases Europe.

This session will host several experts such as Dr Irina Mykycak, Deputy Minister of Health Ukraine, and Katarzyna Swieczkowska from the Polish Association For Persons with Intellectual Disability.

In order to include anyone who would like to join the conversation but may have difficulty understanding or expressing themselves in English, a live translation will be provided from English to Ukrainian and vice versa.

In this session, you will hear first-hand from patient organisations in Ukraine and Poland who are responding to the crisis on the ground as well as coordinated efforts by EURORDIS, including the first results of our Rare Barometer survey on Ukraine, and additional initiatives and provisions put in place by European Reference Networks and other humanitarian organisations.

We encourage all rare disease stakeholders to join this session to hear about the ongoing needs of Ukranians and the concrete ways you can help.


ECRD 2022 Programme


Find more about the programme of the sessions!

An official event of the 2022 French Presidency of the Council of the EU

 Organised by:

Co-organised by :

With the support of

AFM logo

EU funding logo