NEWS: Latest set of speakers announced for world largest patient led rare disease conference ECRD2020 - Register Now

We are delighted to announce the first set of speakers for European Conference on Rare Diseases & Orphan Products (ECRD) 2020.

#ECRD2020 will now take place uniquely online from 14-15 May.

Recognised globally as the largest, patient-led rare disease event, #ECRD2020 will take place via an interactive online platform and is open to everyone, wherever you are in the world.

Registration rates have been adapted to reflect the new fully online format of the event.

Be part of the global rare disease community at ECRD 2020 and shape the future for people living with a rare disease!

Latest Speakers

  • Diego ArdigoChiesi Farmaceutici
  • Anne-Sophie ChalandonSanofi
  • Alain CornetLupus Europe
  • Hannu HämäläinenFinnish Innovation Fund Sitra
  • David LegaMember of the European Parliament
  • Maria MontefuscoRare Diseases Sweden
  • Alexander Natz, EUCOPE
  • Declan NooneEuropean Haemophilia Consortium
  • Christine PatchGenomics England
  • Madeline PeEuropean Organisation for Research and Treatment of Cancer
  • Alberto PereiraENDO ERN
  • Bettina RyllMelanoma Patient Network Europe
  • Violeta Stoyanova-BeninskaCommittee on Orphan Medicinal Products, European Medicines Agency
  • Enrique TerolEuropean Commission
  • Sheela UpadhyayaNational Institute for Health and Care Excellence
  • Elizabeth VroomWorld Duchenne Organization (UPPMD)
  • Petra WilsonHealth Connect Partners 

More announcements to follow…

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