Patients at ECRD2022 - Why Register?

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event.

Patients attending #ECRD2022 will join 1000+ other attendees from around the world (including fellow patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for 5 half days of sessions and discussions featuring over 100 speakers, panellists and chairs.

Top 5 reasons why patients should attend:

  • Debate the ethical, legal and social implications of far-reaching topics such as data collection and sharing, eHealth, gene editing and access to new therapies
  • Learn about the future of diagnosis care and treatment: its new hopes, promises and challenges
  • Share your opinions and experiences as a patient or patient advocate
  • Dialogue with all of the stakeholders shaping your environment
  • Networking with your peers and other stakeholders

Register now

Find out more about the Registration Categories and Fees for ECRD 2022.

An official event of the 2022 French Presidency of the Council of the EU

 Organised by:

Co-organised by :

With the support of

AFM logo

EU funding logo