LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
The sun is out, Summer School is in full swing. This week 2️⃣6️⃣ patient advocates and 7 researchers, from 19 countries, representing over 19 rare diseases are meeting online to become experts in medicines research and development.
... 👉https://openacademy.eurordis.org/summerschool/
#EURORDISSummerSchool
Co-operation at the European level is key to advancing rare disease research and care. We need a European single market for gene therapies to ensure that all patients have access to the treatment they need.
828 people have given their reason for European action on rare diseases. Will you help us get 172 more?
When we get together, our voice is strong enough to bring about positive change in the life of everyone living with a #raredisease in Europe. ... 👉https://action.eurordis.org/
Our wish for this week? The #HTARegulation approved!💪
Today might be a milestone towards European cooperation on HTA, for which we all have been waiting for so long!
📣EURORDIS joins the call on @Europarl_EN and @2021PortugalEU to finalise the HTA ... Regulation!
This week 26 patient advocates and 7 researchers from 19 countries have joined the #EURORDIS Summer School to become experts in medicines research and development!🔬
Together we can make a difference! 💪 http://l.eurordis.org/summerschool
The intensive training of this year's #EURORDISSummerSchool just started! Here's what the #RareDisease patient advocates & researchers attending told us about their 24h+ pre-training 💪(webinars, e-learning courses): informative, interesting, ... comprehensive, inspiring & much more
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
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