LEARN
about the latest advances, challenges, facts, figures and trends in the field of rare diseases with over 100 expert speakers.
SHAPE THE FUTURE
of rare diseases alongside patient advocates, policy-makers, healthcare industry representatives, clinicians, payers, regulators and Member State representatives.
NETWORK &
SHOWCASE YOUR WORK
to all stakeholders of the rare disease community.
EURORDIS has signed this Joint Letter on #COVID19andCancer in support of the 5.1 million people living with rare cancer in Europe. #StrongerTogether
A warm welcome to the 2⃣6⃣ patient advocates from 16 countries that are taking part, from today, in the 2021 #EURORDISWinterSchool! 🙌
They will learn more about...
👩🔬Scientific Innovation
🔬Translational Research
Visit the EURORDIS Open ... Academy👉https://openacademy.eurordis.org/winterschool/
The European Alliance for Newborn Screening (NBS) in Spinal Muscular Atrophy #SMA demands that by 2025, NBS programs in all European countries include a test for SMA for all newborn children 👣
Do you have an update about your country? ... http://l.eurordis.org/rQ4
Save the date! The @ERN_RND and @euro_nmd joint webinar on language-led dementias.
📅 4 May, 15-16h CET
📣Speaker: Anna Volkmer (@volkmer_anna)
Register now👉 http://bit.ly/3tJpDY9
Some people continue to experience COVID-19 symptoms weeks after the infection. Those living with a rare disease are particularly affected, being at increased risk of getting seriously ill from the coronavirus.
👉Get the right support now: ... https://www.eurordis.org/covid19resources
People living with a #raredisease🧑 and their carers 👩⚕️are experts on the disease that affects them
We need a new rare disease policy at the EU level, which would engage🤝, empower💪 & treat patients and carers as policy actors!
... #Rare2030 👉http://l.eurordis.org/SRP
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
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