Posters

Submissions for posters are now open – please complete the form below before 31st January 2018.

Guidelines

  • Poster abstract submissions accepted in English only.
  • Poster abstract submissions are limited to 300 words.
  • You may be co-author of any number of poster abstracts but presenting author of only one.
  • Please indicate if your abstract has already been presented at other events.

Selection procedure

Posters abstracts will be reviewed by the ECRD 2018 Poster Committee in February 2018. Notifications will be sent to all poster authors by end of February 2018. Please note that poster applicants are not exempt from paying the full registration fees to attend ECRD 2018.

Poster themes

The themes mentioned below suggest issues and topics the Programme Committee would like to have addressed and should serve as a valuable guide as you develop your poster abstract.

Theme 1: Structuring the Research & Diagnosis Landscape

Reports on how research is shifting the approach to diagnosis; ways in which patients are being trained, educated and empowered in research; examples of bioethical research on the impact of genomic medicine; examples of co-design between patients, academics and industry; innovative models of patients’ engagement in research & research funding.

Theme 2: Breakthrough medicines on the horizon

More information to come soon.

Theme 3: The Digital Patient

Breakthroughs in digital innovation in healthcare; examples of patient-led digital revolutions; reports on the digital transformation of the healthcare system including experiences from hospitals, healthcare providers and patients, highlighting successes and failures to be learnt from.

Theme 4: Quality of Life: making what matters, matter

Reports of patient perspectives on quality of life; methodologies to define quality of life indicators and outcomes; case studies of meaningful integration of quality of life indicators in the design and evaluation of treatments and services; case studies on Case Management; innovative services, policies or practices to implement integrated care for people living with rare diseases; next practices to guarantee better quality of life to people living with rare disease and their carers, such as futuristic policies, services, and technologies.

Theme 5: Economical perspectives in rare diseases

Studies on the burden of rare diseases, the cost of illnesses (individual diseases and on an aggregated level); examples of the application of value frameworks to access decision; the assessment of feasibility of new approaches to funding; looking ahead to the next decade: -challenges & opportunities.

Theme 6: Global Rare Equity: Are we there yet?

Examples of how you are working towards building greater international synergy to make a difference at global, national and local levels.

Theme 7: Care Provision

More information to come soon.

Theme 8: Rare Disease Patient Groups Innovations

Innovative strategies/approaches/services or projects which could potentially be useful to other patient groups/healthcare professionals/academia or which deserve to be promoted internationally and recognised by national and European authorities.

Theme 9: Open Topic

What would you like to say about your disease, your actions, your vision?

 

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