Why you should attend ECRD2022

Why you should attend ECRD2022

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease healthcare event.

The participants who joined us at #ECRD2022 have collaborated with 1000+ other attendees from around the world (including patient advocates, policy makers, healthcare industry, academics and payers) for 5 half days of sessions and discussions featuring over 100 fantastic speakers, panellists and chairs.

We’ve been talking to Professor Helene Dollfus (Strasbourg University Hospital and ERN-EYE Coordinator) and Ruediger Gatermann (Senior Director Policy, Advocacy and Government Affairs Europe, CSL Behring GmbH)  and in the videos below they explain why they believe #ECRD2022 is a must attend event.

Professor Hélène Dollfus

Some of the others benefits of attending include:

  • Dialogue with all of the stakeholders shaping your environment
  • Hear from patients first-hand about their needs and experiences
  • Co-create the policies and services of the future to support measurable and improved health outcomes for people living with a rare disease
  • Exchange views on technological developments and best practices that are changing the rare disease landscape

An official event of the 2022 French Presidency of the Council of the EU

 Organised by:

Co-organised by :

With the support of

AFM logo

EU funding logo