Why you should attend ECRD2022

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease healthcare event.
The participants who joined us at #ECRD2022 have collaborated with 1000+ other attendees from around the world (including patient advocates, policy makers, healthcare industry, academics and payers) for 5 half days of sessions and discussions featuring over 100 fantastic speakers, panellists and chairs.
We’ve been talking to Professor Helene Dollfus (Strasbourg University Hospital and ERN-EYE Coordinator) and Ruediger Gatermann (Senior Director Policy, Advocacy and Government Affairs Europe, CSL Behring GmbH) and in the videos below they explain why they believe #ECRD2022 is a must attend event.
Professor Hélène Dollfus
Ruediger Gatermann
Some of the others benefits of attending include:
- Dialogue with all of the stakeholders shaping your environment
- Hear from patients first-hand about their needs and experiences
- Co-create the policies and services of the future to support measurable and improved health outcomes for people living with a rare disease
- Exchange views on technological developments and best practices that are changing the rare disease landscape

An official event of the 2022 French Presidency of the Council of the EU
