Theme 5: Achieving the triple A’s by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease - ECRD2020

There are more life-changing therapies for people living with rare diseases are in development than ever before, yet at our current pace, it will still take decades to cover all our unmet needs. The rare disease community still faces a number of challenges in accessing authorised therapies, which indicates that the system in its current design is not functioning to the benefit of all, particularly those people living with a rare disease.

  • How can we collectively improve the functioning of the system by 2030?
  • What are the solutions to ensure the sustainable development of therapies that are truly available to all?

Theme 5 will examine the different aspects of the systems which need significant change.

Theme Leaders

 

Theme Support

  • Simone Bosseli, Public Affairs Director, EURORDIS
  • Ana Palma, Senior Director Global HTA & Patient Access Lead SOBI

 

Latest Speakers and Sessions

Download the Theme 5 session profile for the latest speaker information.

 

Register now

#ECRD2020 takes place uniquely online via an interactive online platform on 14 and 15 May and it is recognised globally as the largest, patient-led rare disease event. 

Find out more about the Registration Categories and Fees for ECRD 2020.

#ECRD2020 takes place uniquely online via an interactive online platform on 14 and 15 May and it is recognised globally as the largest, patient-led rare disease event. 

 

Registration Deadline

  • Payments via Bank Transfer: 1 May 2020 (23:59 CEST)
  • Payments via Credit Card, Debit Card of American Express: 10 May 2020 (23:59 CEST)

Organised by:

Co-organised by:

 

With the support of

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