Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development - ECRD2020

Theme 4 takes stock of the progress so far in developing medicines for people living with rare diseases, and to consider how this field has evolved.

We will look at recent scientific innovations, clinical research, regulatory solutions, roadblocks, and challenges to developing therapies which match the needs of the patients.

We will also consider ways of embedding real-life evidence into the therapeutic development processes.

Theme Leaders

  • Dr. Diego Ardigo, Global Rare Diseases R&D Head, Chiesi Farmaceutici, Italy and Chair, Therapies Scientific Committee of IRDiRC
  • Dr. Virginie Hivert, Therapeutic Development Director, EURORDIS & Vice‐Chair, Therapies Scientific Committee of IRDiRC

 

Theme Support

  • Maria Cavaller, Patient Engagement Junior Manager, EURORDIS

 

Latest Speakers and Sessions

Download the Theme 4 session profile for the latest speaker information.

 

Register now

#ECRD2020 takes place uniquely online via an interactive online platform on 14 and 15 May and it is recognised globally as the largest, patient-led rare disease event. 

Find out more about the Registration Categories and Fees for ECRD 2020.

#ECRD2020 takes place uniquely online via an interactive online platform on 14 and 15 May and it is recognised globally as the largest, patient-led rare disease event. 

 

Registration Deadline

  • Payments via Bank Transfer: 1 May 2020 (23:59 CEST)
  • Payments via Credit Card, Debit Card of American Express: 10 May 2020 (23:59 CEST)

Organised by:

Co-organised by:

 

With the support of

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EU funding logo