Humanitarian crisis in Ukraine
Humanitarian crisis in Ukraine To discuss the sizeable challenge of meeting the complex medical needs of the rare diseases patients from Ukraine, a session specially dedicated to the Ukrainian crisis was organised on Tuesday, 28th June from 11:00 to 13:00 (CET) chaired by Anastasiia Saliuk, EURORDIS- Rare Diseases Europe. This session hosted several experts such […]
Networking Sessions
Networking Sessions One of the most valuable takeaways from any conference is the new relationships and contacts made through networking. Each year, the ECRD attracts hundreds of stakeholders including the rare disease patient community, academia, regulators, policy makers and healthcare professionals. This abundance of participants makes each ECRD a must-attend event for those who wish […]
Satellite meetings
Satellite Meetings Recognised globally as the largest, patient-led rare disease policy event, the ECRD is a unique opportunity to gather key opinion decision makers in various countries to consider how EU policies and national strategies will link in the coming years. On this occasion, a series of satellite meetings organised on a country level provided […]
Thought Leaders Sessions
Thought Leader Sessions For this year’s ECRD, participants had the opportunity to join 3 innovative Thought Leader Sessions to learn more about Together4RD (Multi-stakeholder initiative to unlock European Reference Networks (ERN) collaboration with industry), Rare Diseases International – Preparing the foundations of a Global Rare Disease Network and the future Rare Diseases Partnership (Horizon Europe)-Ambition, Vision […]
Why you should attend ECRD 2022
Why you should attend ECRD2022 The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease healthcare event. The participants who joined us at #ECRD2022 have collaborated with 1000+ other attendees from around the world (including patient advocates, policy makers, healthcare industry, academics and payers) for 5 half days of […]
Chairs of the Conference
Meet our exceptional chairs ECRD 2022 was the opportunity to meet our session chairs from around the world who were be taking part in the ECRD 2022 conference. To help us create the ecosystem required to address the unmet needs and persisting inequalities across Europe, we had secured leading experts in each field to host […]
Continuing Education ECRD 2022
Continuing Education ECRD 2022- Register Now Thanks to the expertise of over 100 expert speakers, ECRD 2022 has once again been approved by the Commission for Professional Development (CPD) of the Swiss Association of Pharmaceutical Professionals (SwAPP) and the Swiss Society of Pharmaceutical Medicine (SGPM). The conference was honoured with 13.5 credits for pharmaceutical medicine. […]
Poster Winners ECRD 2022
Poster Contest Winners Congratulation to all authors for your amazing work! Out of the over 250 high-quality posters we have received for ECRD 2022, we are delighted to present to you the four top scoring ones, listed below, which were presented live on the first day of the conference, on Monday, 27th June (16:00-17:00 CET). […]
Patients at ECRD 2022
Patients at ECRD2022 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Patients attending #ECRD2022 joined 1000+ other attendees from around the world (including fellow patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for 5 half days of sessions and discussions featuring […]
Healthcare professionals at ECRD 2022
Healthcare professionals at ECRD2022 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease healthcare event. Healthcare professionals attending #ECRD2022 joined 1000+ other attendees from around the world (including peers, patient advocates, policy makers, healthcare industry, academics and payers) for 5 half days of sessions and […]
Industry Representatives at ECRD2022
Healthcare Industry at ECRD2022 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Industry representatives attending #ECRD2022 joined 1000+ other attendees from around the world (including peers, patient advocates, healthcare professionals, regulators, academics and payers) for 5 half days of sessions and discussions featuring […]
Policy Makers at ECRD 2022
Policy makers at ECRD2022 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease policy event. Policy makers attending #ECRD2022 joined 1000+ other attendees from around the world (including peers, patient advocates, healthcare professionals, healthcare industry, academics and payers) for 5 half days of sessions and […]
Learning pathways
Topics presented during the conference To help participants navigate the conference, the visual below details the main topics included in the programme. The icons related to each topic appear on the Programme at a Glance in each of the sessions in which they were discussed. Therefore allowing participants to choose their own learning pathway according […]
ECRD 2020 – all sessions available to you for one year!
ECRD 2020 – all sessions available to you for one year! The 10th edition of the European Conference on Rare Diseases & Orphan Products 2020, which took place exclusively online for the first time on 14 & 15 May, was an unprecedented success! A record 1,500 participants from 57 countries registered for the ECRD 2020 […]
Why we are attending – Takeda – ECRD 2020
Why we are attending – Partner interview, Dr. Wolfram Nothaft, Takeda Pharmaceutical Company Limited – ECRD2020 https://youtu.be/gRYPCoPn0aU Ahead of #ECRD2020 which takes place on 14 and 15 May 2020 exclusively online, we hear from Dr. Wolfram Nothaft, Chief Medical Officer, Takeda, on the importance of the Global Commission to End the Diagnostic Odyssey for Children […]
1300+ Registrations – Last Few Spaces – #ECRD2020
NEWS: 1300+ Registered for #ECRD2020 – Last Spaces Available With the European Conference on Rare Diseases & Orphan Products (ECRD) only a few days away, we are delighted to confirm that over 1300 attendees have now completed the online registration for the event. We had an overwhelming response for people wanting to attend #ECRD2020 and […]
Why you should attend ECRD 2020 – Register Now
NEWS: Why you should attend ECRD2020 – According to some of our speakers! The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, policymakers, researchers, clinicians, industry representatives, payers and regulators. https://youtu.be/aHj5jbXzWqohttps://youtu.be/9sl5G49I9HMhttps://youtu.be/DKLeQzqI5rQhttps://youtu.be/TeKC5IHeePk We spoke with […]
Why we are attending – Pfizer Rare Disease – ECRD 2020
Why we are attending – Partner interview, Pfizer Rare Disease – ECRD2020 Ahead of #ECRD2020 which takes place on 14 and 15 May 2020 exclusively online, we had a chat with Reda Guiha (RG), Regional President, International Developed Markets, Pfizer Rare Disease, who explained the Conference is so important to Pfizer. ECRD: Why is it […]
Registration Deadline 10 May – ECRD 2020
Registration Deadline is 23:59 CET 10 May – ECRD2020 We are happy to announce that the registration deadline for the largest, patient-led rare disease event has now been extended to 10 May 2020. With #ECRD2020 now taking place completely online, we have been able to extend the registration deadline for paying by Credit Card, Direct […]
Full Programme now available – ECRD 2020
Full Programme Now Available – ECRD2020 #ECRD2020 is happy to announce that the full programme to the largest, patient-led rare disease event is now available on the Conference website. Over two days, the European Conference on Rare Diseases & Orphan Products gathers over 1000+ stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange […]
Theme 6: The digital health revolution – ECRD 2020
Theme 6: The digital health revolution: hype vs. reality – ECRD2020 Theme 6 examines the technological innovations underpinning disruption in medicine and science, as well as the legal, ethical and policy foundations that can frame future outcomes in this area. The theme will also look at how technology can support the social inclusion of people […]
Theme 5: Achieving the triple A’s by 2030 – ECRD 2020
Theme 5: Achieving the triple A’s by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease – ECRD2020 There are more life-changing therapies for people living with rare diseases are in development than ever before, yet at our current pace, it will still take decades to cover all our unmet needs. […]
Theme 4: When therapies meet the needs – ECRD 2020
Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development – ECRD2020 Theme 4 takes stock of the progress so far in developing medicines for people living with rare diseases, and to consider how this field has evolved. We will look at recent scientific innovations, clinical research, regulatory solutions, roadblocks, and challenges […]
Theme 3: Share, Care, Cure – ECRD 2020
Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030 – ECRD2020 Fast forward 20 years and the very fabric of our national health and welfare systems will be unrecognisable, transformed by the disruptive innovation and technologies of our modern age. Even today, many of our everyday services have already been radically transformed […]
Theme 2: Our values, our rights, our future – ECRD 2020
Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion – ECRD2020 Evidence shows that people living with a rare disease and their families continue to face serious every-day challenges to their social inclusion. Rare diseases often ensue a high level of psychological, social and economic vulnerability and are detrimental to people’s active […]
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