News

Why we are attending – Takeda – ECRD 2020

Why we are attending – Partner interview, Dr. Wolfram Nothaft, Takeda Pharmaceutical Company Limited – ECRD2020 https://youtu.be/gRYPCoPn0aU Ahead of #ECRD2020 which takes place on 14 and 15 May 2020 exclusively online, we hear from Dr. Wolfram Nothaft, Chief Medical Officer, Takeda, on the importance of the Global Commission to End the Diagnostic Odyssey for Children […]

Why you should attend ECRD 2020 – Register Now

NEWS: Why you should attend ECRD2020 – According to some of our speakers! The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policymakers, researchers, clinicians, industry representatives, payers and regulators. https://youtu.be/aHj5jbXzWqohttps://youtu.be/9sl5G49I9HMhttps://youtu.be/DKLeQzqI5rQhttps://youtu.be/TeKC5IHeePk We spoke with […]

Full Programme now available – ECRD 2020

Full Programme Now Available – ECRD2020 #ECRD2020 is happy to announce that the full programme to the largest, patient-led rare disease event is now available on the Conference website. Over two days,  the European Conference on Rare Diseases & Orphan Products gathers over 1000+ stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange […]

Theme 4: When therapies meet the needs – ECRD 2020

Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development – ECRD2020 Theme 4 takes stock of the progress so far in developing medicines for people living with rare diseases, and to consider how this field has evolved. We will look at recent scientific innovations, clinical research, regulatory solutions, roadblocks, and challenges […]

Theme 3: Share, Care, Cure – ECRD 2020

Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030 – ECRD2020 Fast forward 20 years and the very fabric of our national health and welfare systems will be unrecognisable, transformed by the disruptive innovation and technologies of our modern age. Even today, many of our everyday services have already been radically transformed […]

Theme 1: The Future of Diagnosis – ECRD 2020

Theme 1: The Future of Diagnosis: New Hopes, Promises and Challenges – ECRD2020 Theme 1: The future of diagnosis: new hopes, promises and challenges Recent scientific and technological developments have meant that the diagnosis of rare diseases has improved considerably over the last few years. Theme 1 examines the current landscape and also debate future trends and […]

Yann Le Cam on ECRD 2020 – Register Now

NEWS: Yann Le Cam of EURORDIS-Rare Diseases Europe on ECRD2020 – Register now https://youtu.be/00iYEfXxVLM The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policymakers, researchers, clinicians, industry representatives, payers and regulators. Earlier today we […]

Industry at ECRD 2020 – Register Now

NEWS: Industry attendance at ECRD2020 – Who should register? The European Conference on Rare Diseases & Orphan Products (ECRD) is an opportunity for industry to come together with patients to discuss the state-of-the-art in rare disease policy, research, diagnosis, treatment and care. #ECRD2020 takes place uniquely online via an interactive online platform on 14 and […]

ECRD 2020 pre conference webinar – full recording

NEWS: Watch recording of #ECRD2020 pre-conference webinar The pre-conference webinar took place on Thursday 23 April. It was an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions throughout each theme of the European Conference on Rare Diseases and Orphan Products, which […]

Policymakers at ECRD 2020 – Register Now

NEWS: Policymakers at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Policymakers attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for two days of talks, discussions and sessions […]

Speaker Announcements ECRD 2020 – Register Now

NEWS: Latest set of speakers announced for world largest patient led rare disease conference ECRD2020 – Register Now We are delighted to announce the first set of speakers for European Conference on Rare Diseases & Orphan Products (ECRD) 2020. #ECRD2020 will now take place uniquely online from 14-15 May. Recognised globally as the largest, patient-led rare […]

Clinicians at ECRD 2020 – Register Now

NEWS: Clinicians at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Clinicians attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for two days of talks, discussions and sessions […]

Healthcare Industry at ECRD 2020 – Register Now

NEWS: Healthcare Industry at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Colleagues from the Healthcare Industry attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for two days […]

Participate online ECRD 2020 (14-15 May)

NEWS: Participate online in the European Conference on Rare Diseases & Orphan Products 2020 (14-15 May) The European Conference on Rare Diseases & Orphan Products (ECRD) 2020 will now take place uniquely online from 14-15 May. Recognised globally as the largest, patient-led rare disease event, #ECRD2020 will take place via an interactive online platform and is […]

Patients at ECRD 2020 – Register Now

NEWS: Patients at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Patients attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare professionals, healthcare industry, academics, regulators and payers) for two days of talks, discussions and sessions […]

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