Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030 – ECRD2020 Fast forward 20 years and the very fabric of our national health and welfare systems will be unrecognisable, transformed by the disruptive innovation and technologies of Read More
Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion – ECRD2020 Evidence shows that people living with a rare disease and their families continue to face serious every-day challenges to their social inclusion. Rare diseases often ensue Read More
Theme 1: The Future of Diagnosis: New Hopes, Promises and Challenges – ECRD2020 Theme 1: The future of diagnosis: new hopes, promises and challenges Recent scientific and technological developments have meant that the diagnosis of rare diseases has improved considerably over Read More
NEWS: Yann Le Cam of EURORDIS-Rare Diseases Europe on ECRD2020 – Register now https://youtu.be/00iYEfXxVLM The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease Read More
NEWS: Industry attendance at ECRD2020 – Who should register? The European Conference on Rare Diseases & Orphan Products (ECRD) is an opportunity for industry to come together with patients to discuss the state-of-the-art in rare disease policy, research, diagnosis, treatment Read More
NEWS: Watch recording of #ECRD2020 pre-conference webinar The pre-conference webinar took place on Thursday 23 April. It was an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy Read More
NEWS: Policymakers at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Policymakers attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More
NEWS: Latest set of speakers announced for world largest patient led rare disease conference ECRD2020 – Register Now We are delighted to announce the first set of speakers for European Conference on Rare Diseases & Orphan Products (ECRD) 2020. #ECRD2020 Read More
NEWS: Clinicians at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Clinicians attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More
NEWS: ECRD2020 is now exclusively online- Register Now! The European Conference on Rare Diseases & Orphan Products (ECRD) 2020 will now take place exclusively online from 14-15 May. Using an innovative platform, people from around the world will now be Read More