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Author: ECRD Team

Theme 2: Our values, our rights, our future – ECRD 2020

28 April 202028 April 2020 ECRD TeamNews, Themes

Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion – ECRD2020 Evidence shows that people living with a rare disease and their families continue to face serious every-day challenges to their social inclusion. Rare diseases often ensue Read More

Theme 1: The Future of Diagnosis – ECRD 2020

28 April 202028 April 2020 ECRD TeamNews, Themes

Theme 1: The Future of Diagnosis: New Hopes, Promises and Challenges – ECRD2020 Theme 1: The future of diagnosis: new hopes, promises and challenges Recent scientific and technological developments have meant that the diagnosis of rare diseases has improved considerably over Read More

Yann Le Cam on ECRD 2020 – Register Now

27 April 202028 April 2020 ECRD TeamNews

NEWS: Yann Le Cam of EURORDIS-Rare Diseases Europe on ECRD2020 – Register now https://youtu.be/00iYEfXxVLM The European Conference on Rare Diseases & Orphan Products (ECRD) is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease Read More

Industry at ECRD 2020 – Register Now

24 April 202026 April 2020 ECRD TeamIndustry, News

NEWS: Industry attendance at ECRD2020 – Who should register? The European Conference on Rare Diseases & Orphan Products (ECRD) is an opportunity for industry to come together with patients to discuss the state-of-the-art in rare disease policy, research, diagnosis, treatment Read More

ECRD 2020 pre conference webinar – full recording

23 April 202024 April 2020 ECRD TeamNews

NEWS: Watch recording of #ECRD2020 pre-conference webinar The pre-conference webinar took place on Thursday 23 April. It was an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy Read More

Policymakers at ECRD 2020 – Register Now

22 April 20205 May 2020 ECRD TeamNews

NEWS: Policymakers at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Policymakers attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More

Speaker Announcements ECRD 2020 – Register Now

21 April 202023 April 2020 ECRD TeamNews

NEWS: Latest set of speakers announced for world largest patient led rare disease conference ECRD2020 – Register Now We are delighted to announce the first set of speakers for European Conference on Rare Diseases & Orphan Products (ECRD) 2020. #ECRD2020 Read More

Clinicians at ECRD 2020 – Register Now

20 April 20207 May 2020 ECRD TeamNews

NEWS: Clinicians at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Clinicians attending #ECRD2020 will join 1000+ other attendees from around the world (including patient advocates, healthcare Read More

ECRD 2020 is exclusively an online conference – Register Now

17 April 202022 April 2020 ECRD TeamNews

NEWS: ECRD2020 is now exclusively online- Register Now! The European Conference on Rare Diseases & Orphan Products (ECRD) 2020 will now take place exclusively online from 14-15 May. Using an innovative platform, people from around the world will now be Read More

Healthcare Industry at ECRD 2020 – Register Now

16 April 202026 April 2020 ECRD TeamNews

NEWS: Healthcare Industry at ECRD2020 – Why Register? The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led rare disease event. Colleagues from the Healthcare Industry attending #ECRD2020 will join 1000+ other attendees from around the Read More

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