Решающие изменения в области борьбы с редкими заболеваниями, способствующие более широкому использованию возможностей медицины 21 века для лечения больных: вместе мы можем изменить будущее!

Fare la differenza nel modo di prestare assistenza sanitaria alle persone affette da malattie rare nel 21° secolo: insieme possiamo cambiare il futuro! Riunire insieme tutte le malattie rare, in tutte le nazioni europee

Changer la donne pour le traitement des maladies rares au XXIe siècle : ensemble, nous changerons l’avenir pour le meilleur! Rapprocher toutes les maladies rares, à travers tous les pays européens

Wegbereiter im Bereich der seltenen Krankheiten stellen Patienten mit seltenen Krankheiten Gesundheitsversorgung des 21. Jahrhunderts bereit: Wir ändern die Zukunft zusammen!

Factores de Cambio en las Enfermedades Raras brindando la asistencia sanitaria del siglo XXI a los pacientes con enfermedades raras: ¡Juntos podemos cambiar el futuro!

Game Changers in Rare Diseases Delivering 21st century healthcare to rare disease patients: Together we can change the future!

Videos of the plenary sessions and speakers’ presentations

Posters available

Executive Summary ECRD 2016


This is the official video for #RareDiseaseDay 2017! Research: With research, possibilities are limitless!

Rare Disease Day is a patient-led campaign that brings together millions of patients, families, carers, medical professionals, policy makers and members of the public in solidarity – everyone can get involved!

The Rare Disease Day 2017 theme is research and slogan “With research, possibilities are limitless”. Rare disease research is crucial to providing patients with the solutions they need, whether it is a treatment, cure or improved care. The tenth edition of Rare Disease Day will see people from all over the world come together to advocate for more research on rare diseases. 

People living with a rare disease are sometimes unable to find answers and medical solutions they need, often because of a lack of research. To illustrate this frustration, this year’s video draws a parallel with a routine that many of us go through multiple times a day – searching for an answer on the internet. The video highlights how isolating it is when you search on the internet but receive the response ‘your search had no results’.

Share the video to become part of the international campaign!