Organising Committee

Organising Committee Members

Name Affiliation(s) Country
sharon-ashton Sharon Ashton Senior Event Manager, EURORDIS France
Simona Bellagambi UNIAMO Italy
Jill Bonjean Resource Development Director, EURORDIS France
Juan Carrión Tudela President, FEDER Spain
Natalie Frankish Development Officer- Scotland, Genetic Alliance UK UK
anja-helm Anja Helm Senior Manager of Relations with Patient Organisations, EURORDIS France
Lene_Jensen Lene Jensen Director, Rare Diseases Denmark Denmark
Tamara_Kohler Tamara Kohler Team Leader, Planning & Development, DIA Europe,

Middle East & Africa

Switzerland
jytte lyngvig Jytte Lyngvig DIA Director, Europe, Middle East & Africa Switzerland
Irina Myasnikova Russian Patient Union Russia
patrice_regnier Patrice Régnier Finance & Operations Director, EURORDIS France
Riedl_Rainer Rainer Riedl President, Pro Rare Austria Austria