Organising Committee

Organising Committee Members

  Name Affiliation(s) Country
Jytte_Lynvig Jytte Lyngvig Director, DIA Europe Switzerland
Tamara_Kohler Tamara Kohler Team Leader, Planning and Development, DIA Europe Switzerland
Mary_Dunkle Mary Dunkle Vice-President of Communications, NORD (National Organization for Rare Disorders) USA
Mirjam_Mann Mirjam Mann Director, ACSHE (German National Alliance for Chronic Rare Diseases) Germany
Cor_Oosterwijk Cor Oosterwijk Director, VSOP (Dutch National Alliance for Rare Diseases) The Netherlands
Lene_Jensen Lene Jensen Director, Rare Disorders Denmark Denmark
Esther Esther Neiditsch-Prigioni General Secretary, ProRaris (Swiss National Alliance for Rare Diseases) Switzerland
Riedl_Rainer Rainer Riedl President, Pro Rare Austria Austria
Zielinkski_Miroslaw Miroslaw Zielinski Chairman, Polish National Forum on the Treatment of Orphan Diseases (ORPHAN) Poland
sharon-ashton Sharon Ashton Senior Event Manager, EURORDIS France
francois_houyez François Houyëz Treatment Information and Access Director, Health Policy Advisor, EURORDIS France
maria_mavris Maria Mavris Therapeutic Development Director, EURORDIS France
anja-helm Anja Helm Senior Manager of Relations with Patient Organisations, EURORDIS France
patrice_regnier Patrice Régnier Finance & Operations Director, EURORDIS France