Patient Advocates Fellowship Programme

Applications are now closed for Patient Fellowship

EURORDIS is offering patient fellowships for up to 40 patients’ advocates to attend the 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016) taking place 26-28 May 2016 in Edinburgh, UK.

These fellowships aim at empowering patients’ advocates by offering a platform for networking opportunities, access to information and sharing experiences.

The programme covers:

  •  Registration (fee waivers or fee reimbursement)
  •  Travel (return trip economy fare flight or train)
  • Accommodation (Up to 3 nights hotel accommodation in Edinburgh)

The total of the travel and hotel expenses reimbursed by EURORDIS cannot exceed 500 € per fellow.


Fellows will be selected based on their advocacy skills and objectives, by an ad hoc committee and notified by 15 January 2016.

Mutual Commitment: Selected patient fellows must be available to attend the EURORDIS Membership Meeting capacity-building workshops taking place on 26 May and all sessions of the ECRD and will be invited to send EURORDIS a short report after the Conference, to share their testimonies and analysis of their country’s situation with respect to access to rare disease information, treatment, care and services.