Patient Advocates Fellowship Programme

EURORDIS is offering patient fellowships for up to 40 patients’ advocates to attend the 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016) taking place 26-28 May 2016 in Edinburgh, UK.

These fellowships aim at empowering patients’ advocates by offering a platform for networking opportunities, access to information and sharing experiences.

The programme covers:

  •  Registration (fee waivers or fee reimbursement)
  •  Travel (return trip economy fare flight or train)
  • Accommodation (Up to 3 nights hotel accommodation in Edinburgh)

The total of the travel and hotel expenses reimbursed by EURORDIS cannot exceed 500 € per fellow.

Patient representatives wishing to benefit from this fellowship programme are invited to fill out and return the Patient Fellowship Programme Application Form here:

Deadline: 15 December 2015

Fellows will be selected based on their advocacy skills and objectives, by an ad hoc committee and notified by 15 January 2016.

Mutual Commitment: Selected patient fellows must be available to attend the EURORDIS Membership Meeting capacity-building workshops taking place on 26 May and all sessions of the ECRD and will be invited to send EURORDIS a short report after the Conference, to share their testimonies and analysis of their country’s situation with respect to access to rare disease information, treatment, care and services.