Friday, 27 May 2016

  • To view videos of the plenary sessions and speakers’ presentations, please click on the name of the speakers below and the coloured bars at the bottom of this page. Only presentations authorised by the speakers are available.

    Click here to view the final programme.

    08.00-18.00 Registration open

    09.00-09.45 Opening Session

    Welcome address and opening remarks by the co-organisers: 

    Keynote Addresses by: 

    09.45-10.15 Coffee break, posters and exhibition

    10.15-12.00 Plenary Session

    Setting the scene for the conference

    Keynote Addresses by: 

    Young patient advocates panel discussion

    Chaired by: Bruno Sepodes, Chair COMP, Portugal

    – Igor Ban, rare cancer survior, RareConnect Web Content
    Manager, EURORDIS, Serbia
    – Eszter Becskeházi, Hungary
    – Synne Lerhol, Secretary General, The Norwegian Association for
    Youth with Disabilities, Norway
    – Emma Rooney, Gaucher disease patient advocate & storyteller,
    Canada / Germany
    – Irina Rotariu, Member of ScotCRN Young Person’s Advisory
    Group, UK

    12.00-13.00 Lunch and exhibition

    13.00-14.00 Poster Session and speed networking session

    14.00-15.30 Choose from 6 parallel sessions (Click bars below)

    15.30-16.30 Coffee break, posters and exhibition

    16.30-18.00 Choose from 6 parallel sessions (Click bars below)

    18.00-19.00 Networking Reception in the exhibit hall

    Please click on the bars below to see a detailed agenda per theme.

    THEME 1 : Game Changers in Research

    THEME 2 : Game Changers in Diagnosis

    THEME 3 : Game Changers in Drug Development, Authorisation and Access

    THEME 4 : Game Changers in Care Provision

    THEME 5 : Game Changers in Social Policy

    THEME 7 : In Partnership with Patients