Check out our #eurdchat Twitter chat!

 



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Thank you rare disease community for your active participation in our twitter chat!

Up to 300 tweets and 1 million impressions in just one hour! And, most importantly a lively discussion with a variety of stakeholders on an important topic for people living with a rare disease and their families.

Don’t hesitate to read the exchange that took place at #eurdchat:


Topic: Progressive patient access schemes and patient involvement in benefit-risk assessment

Discussion questions:

  • What is needed to encourage progressive patient access schemes as well as patient involvement in the benefit-risk assessment?
  • How would industry gain from progressive patient access schemes and patient involvement in benefit-risk assessment?
  • Will progressive patient access & patient involvement in benefit-risk assessment ultimately make the system more sustainable?
  • All those with an interest in these critical issues relating to delivering benefit to rare disease patients are welcome to join and share their thoughts.

This is one of the topics being discussed next month at the European Conference for Rare Diseases and Orphan Products in Berlin. Register here!