Thank you rare disease community for your active participation in our twitter chat!
Up to 300 tweets and 1 million impressions in just one hour! And, most importantly a lively discussion with a variety of stakeholders on an important topic for people living with a rare disease and their families.
Don’t hesitate to read the exchange that took place at #eurdchat:
Topic: Progressive patient access schemes and patient involvement in benefit-risk assessment
This is one of the topics being discussed next month at the European Conference for Rare Diseases and Orphan Products in Berlin. Register here!