CONNAÎTRE
les dernières avancées, les enjeux, les faits, les chiffres et les tendances du domaine des maladies rares avec plus de 100 conférenciers experts.
PRÉPARER L’AVENIR
des maladies rares aux côtés des représentants de patients, de l’industrie pharmaceutique, d’un État membre ou d’un organisme de réglementation, des décideurs, des cliniciens et des payeurs.
RÉSEAUTER & PRÉSENTER VOS TRAVAUX
à toutes les parties prenantes de la communauté maladies rares.
Are you a person living with a #RareDisease, or a carer, actively involved in a patient organisation?
Join our online community and share your experience!
Today is your last chance to register: https://ctsurvey.crowdtech.com/Questionnaire
Newborn screening is a 🔑to a better future for people born with rare diseases.
As we celebrate the Newborn Screening Awareness month, we call on Europe to adopt the 11 Key Principles for newborn screening: http://l.eurordis.org/BwbH
@apneuromuscular ... @95Rare @FEDER_ONG
Are you an advocate for people living with a rare disease? Take our free online training and learn how to:
☑️ Create empowered communities
☑️ Build effective channels and reach the right people.
Learn more: http://l.eurordis.org/1wFs
Newborn screening can help families better plan for their child’s care and treatment.
We want to reinstate the importance of a harmonised approach to newborn screening across Europe to guarantee the highest standard of health for all newborns: ... http://l.eurordis.org/BwbH #2021NBS
Today is your last chance to enter your nomination for one of the 1⃣2⃣ Black Pearl Awards' categories this year!
Let's shine the light on the outstanding accomplishments of all those going that extra mile to improve the lives of people with rare diseases:... http://l.eurordis.org/fwEZ
On this #WorldPatientSafetyDay, we are taking the opportunity to spread awareness on the importance of reporting potential experienced side effects.
Reporting makes medicines safer for everyone and has never been easier with online tools available: ... http://l.eurordis.org/jwCK
This issue includes a comprehensive review of #ECRD2020, as well as articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch #ECRD2020
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Organised by:
Co-organised by:
