CONNAÎTRE
les dernières avancées, les enjeux, les faits, les chiffres et les tendances du domaine des maladies rares avec plus de 100 conférenciers experts.
PRÉPARER L’AVENIR
des maladies rares aux côtés des représentants de patients, de l’industrie pharmaceutique, d’un État membre ou d’un organisme de réglementation, des décideurs, des cliniciens et des payeurs.
RÉSEAUTER & PRÉSENTER VOS TRAVAUX
à toutes les parties prenantes de la communauté maladies rares.
Rare Disease Week has proved to be a success! 👏
38 advocates 📣
from 20 countries 🌍
representing 20 disease-specific areas🧬🧠🩸
…have been trained this week to better advocate at the European level for people with rare diseases!
... 👉https://www.eurordis.org/patient-empowerment-and-training
#ThrowbackThursday Seems like it was yesterday when we celebrated 👏 the outstanding achievements of our community.
Hold on. It was yesterday! 🥳 If you missed it or wish to remember the importance of the #EURORDISAwards, this is your chance! ✨
Thank you for being with us tonight! 🥰
We are pleased to see so many people connected to celebrate all the heroes who have shown their commitment to improving the quality of life for people with rare diseases.
See you next year at the Black Pearl Awards ... 2022 👋
Stay tuned!
Senza l'abito da cerimonia ma seguo il #BlackPearlAwards Gala. Il Presidente del Parlamento Europeo #DavidSassoli è con noi. #EURORDISAwards2021 #Uniamoleforze
Love knows no disease 💙
The sky is the limit when you have this unwavering, unbreakable and unparalleled fondness and devotion for your partner 🧑🤝🧑
Congratulations, Pavol Kulkovský, and thank you for sharing this beautiful moment!
... #RareDiseases #EURORDISAwards2021
I'm proud and more then ever devoted to serve people living with rare diseases and work together with pacients organizations. Today I will celebrate and tomorrow I will try even harder. People with rare diseases deserve the best and I'm here to help them.
... #EURORDISAwards2021 https://twitter.com/Left_EU/status/1364571575303954432
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
Read our comprehensive review of #ECRD2020, including articles on newborn screening, artificial intelligence, and disruptive #innovations in clinical research. https://bit.ly/2W24zgX
#Artificialintelligence #Clinicalresearch #AI #Medicalinnovation
For this issue, we attended the virtual ECRD Congress. Read our comprehensive review, including articles on newborn screening, artificial intelligence, and disruptive innovations in clinical research. https://bit.ly/2W24zgX
#AI #Rarediseases #Clinicalresearch... #ECRD2020
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
¿Quieres saber más sobre las políticas que se proponen para dar forma al futuro de las #EnfermedadesRaras y #MedicamentosHuérfanos en el 2030?
Descarga el resumen ejecutivo de la conferencia #ECRD2020. En inglés, pero muy visual y sintético.👇
... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf
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