EURORDIS Membership Meeting 2014

The EURORDIS General Assembly will be held on Thursday, 8 May at the Andels Hotel, Berlin. The General Assembly will take place from 9 to 11 am. This is a Member only event.

A selection of forums and capacity-building workshops will follow the EURORDIS General Assembly. These sessions are designed to empower patients and patients’ advocates and encourage learning from each other’s experience.

No additional registration fees are charged to patients and patients’ advocates to attend these sessions.

Consult the programme

    • 11.30 – 13.00
    • Meet, Learn, Discuss – Learning from each other Forums are meant to offer patient advocates an opportunity to meet, discuss and learn from each other
    • 13.00 – 14.30
    • Lunch
    • 14:30 – 17:30
    • Patient Advocates Capacity-Building Workshops  
      Capacity building workshops are 3 hours long; they include power point presentations followed by Q&A and debates. The objective is to give patient advocates the knowledge base and tools to actively participate in Rare Disease advocacy work.
    • 18.00 – 19.00
    • The Patient Groups Welcome Reception will offer all patients and patients’ representatives the opportunity to meet and network.


EURORDIS thanks the following companies for their support in the context of EMM 2014 Berlin:emm logos2