Programme Committee

This page contains the list of the programme committee members and their affiliation.

Programme Committee
Name Affiliation(s) Country

Ségolène Aymé

Chair EUCERD / Director ORPHANET France

Yann Le Cam

CEO EURORDIS / Vice Chair EUCERD France

Helena Kaariainen

Vice Chair EUCERD / Ministry of Health Finland Finland

Josep Torrent
i Farnell

General Director Fundacio Doctor Robert / COMP / Past Co-Chair ECRD 2010 Krakow & ECRD 2007 Lisbon Spain

Wills
Hughes-Wilson

Chair of Task Force RDs & ODs of EuropaBio-EBE / Member EUCERD / Member of DIA Advisory Council Europe / Genzyme Belgium

Catarina Edfjaell

Member of DIA Advisory Council Europe /Shire Switzerland

Milan Macek

Chair ESHG / Member EUCERD Czech Republic

Torben Gronnebaek

Past Co-Chair ECRD 2010 Krakow / Member EUCERD (EU Presidency 1st semester 2012) / Rare Disorders Denmark / Board Member EURORDIS Denmark

Lesley Greene

Patient Representative COMP / CLIMB / UK

Gabor Pogany

President Rare Diseases Hungary / Member EUCERD Hungary

Mirando Mrsic

Croatian Society of patients with Rare Diseases / Board Member EURORDIS / Member of Programme Committee EURORDIS Membership Meeting 2011 Amsterdam Croatia

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