Patient Advocate Fellowship Programme

EURORDIS is offering patient fellowships for up to 35 patients’ advocates to attend the 6th European Conference on Rare Diseases & Orphan Products taking place on 23 – 25 May 2012 in Brussels, Belgium.

These fellowships aim at empowering patients’ advocates by offering a platform for networking opportunities, access to information and sharing experiences.

The EURORDIS-ECRD 2012 Patients’ Advocates Fellowship programme is offered to enable the participation of patients’ advocates from: Albania, Armenia, Belarus, Bosnia, Bulgaria, Croatia, Czech Republic, Estonia, Georgia, Hungary, Latvia, Lithuania, Macedonia, Romania, Russian Federation, Serbia, Slovakia, Slovenia, Turkey and the Ukraine.

The programme covers:

• Registration (fee waivers or fee reimbursement)
• Travel (return trip economy fare flight or train)
• Accommodation (Up to 3 nights hotel accommodation in Brussels)

The total of the travel and hotel expenses reimbursed by EURORDIS cannot exceed 600 € per fellow.

Patient representatives wishing to benefit from this fellowship programme are invited to fill out and return the Patient Fellowship Programme Application Form here

Deadline: 10 February 2012
Submissions: anja.helm@eurordis.org

Fellows will be selected based on their advocacy skills and objectives, by an ad hoc committee and notified by 20 February 2012.

Mutual Commitment: Selected patient fellows must be available to attend the Patient Groups Networking Reception taking place on Wednesday, 23 May and will be invited to send EURORDIS a short report after the Conference, to share their testimonies and analysis of their country’s situation with respect to access to rare disease information, treatment, care and services.