<?xml version="1.0" encoding="utf-8"?>
<rss version="2.0"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
>

<channel>
	<title>European Conference on Rare Diseases 2010 in Krakow </title>
	<link>http://www.rare-diseases.eu/2010/</link>
	<description>European Conference on Rare Diseases 2010 in Krakow</description>
	<language>en</language>
	<generator>SPIP - www.spip.net</generator>





	<item>
		<title>3500. Posters</title>
		<link>http://www.rare-diseases.eu/2010/3500-Posters</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/3500-Posters</guid>
		<dc:date>2010-07-13T16:22:33Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_prog_submit</dc:subject>

		<description>This section presents all posters displayed at the 5th European Conference on Rare Diseases addressing Services to Patients, Families and Carers. &lt;br /&gt;The European Branch of the Severe Chronic Neutropenia International Registry: Genetic and Phenotypic Characteristics of a Heterogenous Group of Disorders &lt;br /&gt;Cornalia Zeidler, Germany Cystic Fibrosis in Europe - remote measurement of outcome &lt;br /&gt;Anil Mehta, United Kingdom The Fabry International Network (FIN) Fabry patient survey &lt;br /&gt;Lut De Baere, (...)


-
&lt;a href="http://www.rare-diseases.eu/2010/-Programme-" rel="directory"&gt;2000. Presentations&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-prog-submit-+" rel="tag"&gt;art_prog_submit&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This section presents all posters displayed at the 5th European Conference on Rare Diseases addressing Services to Patients, Families and Carers.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Zeidler-126.pdf&quot;&gt;The European Branch of the Severe Chronic Neutropenia International Registry: Genetic and Phenotypic Characteristics of a Heterogenous Group of Disorders&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Cornalia Zeidler, Germany&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Mehta-CF in Europe - remote
measurement of outcome poster.pdf&quot;&gt;Cystic Fibrosis in Europe - remote measurement of outcome &lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Anil Mehta, United Kingdom&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/DE BAERE-105 FIN Survey Poster.pdf&quot;&gt;The Fabry International Network (FIN) Fabry patient survey&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Lut De Baere, Belgium&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Deybach 103.pdf&quot;&gt;European Porphyria Network (EPNET) for information, epidemiological data, quality and equity of service&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Jean-charles Deybach, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Dan-30.pdf&quot;&gt;Norvegian-Romanian (NoRo) Partnership for Progress in Rare Diseases&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Dorica Dan, Romania&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Pleticha-54bbbs_2010_V.pdf&quot;&gt;Big Brother Big Sister (BBBS) Program&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Robert Pleticha, Romania&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/krakovia_Maria Puiu.pdf&quot;&gt;Research in rare diseases, a common effort of professionals and patients in Romania&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Maria Puiu, Romania&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/142-Schiepatti-poster_kracow.pdf&quot;&gt;The Italian Registry of Membranoproliferative glomerulonephritis: an important tool for investigating the pathogenesis of a rare disease&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Arrigo Schieppati, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/37-Minichiello.pdf&quot;&gt;A web-based system for the prescription, delivery and monitoring of treatments for rare diseases patients: the experience of the Veneto Region Coordinating Centre for Rare Diseases&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;C. Minichiello, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Manea-36.pdf&quot;&gt;A Web-based information system as a tool for the clinical management and support of rare disease patients: the example of amyotrophic lateral sclerosis (ALS)&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;S Manea, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Mazzucato-34.pdf&quot;&gt;An information service on rare diseases: the experience of the Coordinating Centre for Rare Diseases of the Veneto Region&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;M Mazzucato, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Vittozzi-124.pdf&quot;&gt;Evaluation of Population Newborn Screening Practices for Rare Disorders in Member States of the European Union&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;L Vittozzi, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Greek-Winald-.pdf&quot;&gt;The Swedish Rare Disease Information Database&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Christina Greek-Winald, Sweden&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/41.polizzi.pdf&quot;&gt;The Italian National Centre for Rare Diseases: the experience of the Telephone Helpline&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;A Polizzi, Italy&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/68-poster_classif.pdf&quot;&gt;WHO international classification of diseases (ICD) revision process: incorporating rare diseases into the classification scheme - A state of the art&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;S&#233;gol&#232;ne Aym&#233;, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/90-Poster_tests.pdf&quot;&gt;Genetic testing in Europe: transborder testing is a necessity&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;M. Jovanovic, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/95-Poster_Rch.pdf&quot;&gt;Rare diseases research in Europe:&lt;br /&gt;
an overview based on data from the Orphanet database (Nov 2009)&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;N Martin, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/98-Poster_OD.pdf&quot;&gt;New functionalities in Orphanet for orphan drugs, R&amp;D and marketing authorisations to better serve the rare disease community&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;V. Hivert, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/MAVRIS Poster 108.pdf&quot;&gt;EURORDIS Summer School for patient advocates in clinical trials and drug development&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Maria Mavris, France&#160;&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Adjibi.pdf&quot;&gt;ORPHANDEV, a Clinical Trials Network Dedicated to Orphan Drugs and Therapeutics Development for Rare Diseases&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Yolande Adjibi, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Brignol.pdf&quot;&gt;The profession of Integration Assistant and the AFM Regional Services&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Tuy Nga Brignol, France&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Mikos-190.pdf&quot;&gt;How a motivation program can affect treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate &#8220;Life Club CF&#8221;, a programme intended for patients with cystic fibrosis&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Marcin Mikos, Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Wierzba-156-Psychological aspects of living with rare disease.pdf&quot;&gt;Psychologicalaspects of living with rare disease:development of psychological skills of rare disease patients. how to improve patients` quality of life by developing psychological skills necessary to cope with the disease.&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Jolanta Wierzba, Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Czerniawska-PID Poster_Jeffrey Modell Foundation.pdf&quot;&gt;Primary Immunodeficiencies [PID]: driving Diagnosis for Optimal Care in Europe&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Mrs Marta Czerniawska, Belgium&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Bergloff.pdf&quot;&gt;European effort for the improved diagnostics of rare primary immunodeficiency disorders.&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Anna Bergl&#246;f,Sweden&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Grut-16.pdf&quot;&gt;People with rare diseases Common experiences&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Lisbet Grut, Norway&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Naess-12-Turner syndrome Health status poster Krakow.pdf&quot;&gt;Health Status in Women with Turner Syndrome &#8211; a questionnaire study on health status, education and work participation&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Eva Elisabeth Naess, Norway&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Solberg -N&#176;15.pdf&quot;&gt;E-Learning for carers&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Olga Solberg, Norway&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Vigdis-63-Poster Krakow 13-05-10 - 80x120 cm - Marfan.pdf&quot;&gt;Ageing amongst individuals with invisible disorders: The importance of patient organizations&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Vigdis Hegna Myrvang, Norway&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Jensen.pdf&quot;&gt;Social Profiles, a dialogue tool&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Lene Jensen, Denmark&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Paajanen-ECRD2010_Finnish_RD_Network.pdf&quot;&gt;Creating CONNECTIONS through Co-operation in Finland&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Paajanen, Finland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/161-Chachulska-Boguszewska.pdf&quot;&gt;Molecular characteristics of the Niemann-Pick type C Polish patients&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Anna Boguszewska-Chachulska, Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/plakat 23 Michal Skoczylas.pdf&quot;&gt;How to teach medics about Rare Diseases?&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Michal Skoczylas, Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Bernatowska-128.pdf&quot;&gt;The patients' organizations of children with primary immunodeficiency in Poland&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Ewa Bernatowska, Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/plakat 45 Latos Bielenska.pdf&quot;&gt;Polish Registry of Congenital Malformations - an useful tool of rare diseases surveillance countrywide&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;A Latos-Bielenska , Poland&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/ROGAC -76.pdf&quot;&gt;Caregiver assistance in treating mitochondrial diseases in children&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Mihael Rogac, Slovenia&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Searle-123-UniqueSearlePosterKrakow.pdf&quot;&gt;Evidence-based information guides to rare chromosome disordersfor families and professionals&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Dr Beverly Searle, United Kingdom&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Strong-130-DYSCERNE Guidelines EURORDIS FINAL.pdf&quot;&gt;DYSCERNE: Presenting a Methodology for Developing Clinical Management Guidelines for Rare Diseases&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;K Strong, United Kingdom&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/mccormack Cell therapies for dmd1.pdf&quot;&gt;Cell therapies for Duchenne muscular dystrophy (DMD): some ethical issues for personalised medicines&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Pauline McCormack, United Kingdom&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Ranganath.pdf&quot;&gt;Identifying Alkaptonuria (AKU) in the population at large. Challenges and solutions&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;L Ranganath, United Kingdom&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Smit-99.pdf&quot;&gt;Ageing in rare, chronic diseases&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Cees Smit, the Netherlands&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Siderious-160.pdf&quot;&gt;The care as perceived by individuals with Shwachman Diamond Syndrome (SDS) in Canada, Italy, Netherlands, United Kingdom and United States&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Liesbeth Siderius, the Netherlands&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Stefavov-162.pdf&quot;&gt;Information Centre for Rare Diseases and Orphan Drugs in Bulgaria&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Rumen Stefanov, Bulgaria&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Zimmermann.pdf&quot;&gt;EU Clinical trial regulation in the environment of rare diseases: Time for a change&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Martine ZIMMERMANN, ALEXION&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Armayones 111.pdf&quot;&gt;APTIC: A Social Network to Improve the Quality of Life of Patients' Associations Members&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;M Armayones, Spain&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Trigo-Poster_125_EST.pdf&quot;&gt;Resource creation for neuromuscular disease information management&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Elena S&#225;nchez Trigo, Spain&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Armando-144-Fundaci&#243;n FOP MEDICOS.pdf&quot;&gt;Rare Diseases in ARGENTINA: Survey of physicians' knowledge, practices and opinion&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;R Armando, Argentina&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Liljesthr&#246;m-14-Fundacion FOP FAMILIAS.pdf&quot;&gt;Rare Diseases in Argentina: what a survey of families tell us about the diagnosis process&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;M. Liljesthr&#246;m, Argentina&lt;/p&gt; &lt;h3&gt;&lt;a href=&quot;http://www.rare-diseases.eu/2010/IMG/Media/Wallentin-187.pdf&quot;&gt;LIVING WITH OI Fragile bones but unbreakable spirit&lt;/a&gt;&lt;/h3&gt;
&lt;p&gt;Ute Wallentin, Germany&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>100. Results of your search with the word:</title>
		<link>http://www.rare-diseases.eu/2010/Results-of-your-search-with-the</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Results-of-your-search-with-the</guid>
		<dc:date>2009-10-29T18:12:38Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>moteur_en</dc:subject>
		<dc:subject>art_recherche</dc:subject>

		<description>An error in emphasis or capital should not prevent research, but a spelling error may affect the outcome.

-
&lt;a href="http://www.rare-diseases.eu/2010/-English-" rel="directory"&gt;English&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-moteur-en-+" rel="tag"&gt;moteur_en&lt;/a&gt;, 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-recherche-+" rel="tag"&gt;art_recherche&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;An error in emphasis or capital should not prevent research, but a spelling error may affect the outcome.&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>11000. About the Polka project</title>
		<link>http://www.rare-diseases.eu/2010/About-the-polka-project</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/About-the-polka-project</guid>
		<dc:date>2009-10-29T17:03:15Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_polka</dc:subject>

		<description>This page contains information on the Polka project. The European Conference on Rare Diseases 2010 in Krakow is part of this project. &lt;br /&gt;Click here to learn more on the Polka Project


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-polka-+" rel="tag"&gt;art_about_polka&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains information on the Polka project. The European Conference on Rare Diseases 2010 in Krakow is part of this project.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;p&gt;Click &lt;a href=&quot;http://www.eurordis.org/content/polka-patients-consensus-preferred-policy-scenarii-rare-disease&quot;&gt;here&lt;/a&gt; to learn more on the Polka Project&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>10000. ECRD 2007 in Lisbon</title>
		<link>http://www.rare-diseases.eu/2010/ECRD-2007-in-Lisbon</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/ECRD-2007-in-Lisbon</guid>
		<dc:date>2009-10-29T16:55:13Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_2007</dc:subject>

		<description>Direct to www.rare-diseases.eu/2007

-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-2007-+" rel="tag"&gt;art_about_2007&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;Direct to &lt;a href=&quot;http://www.rare-diseases.eu/2007 &quot; target=&quot;_blank&quot; title=&quot;www.rare-diseases.eu/2007 - Open in a new window&quot;&gt;www.rare-diseases.eu/2007 &lt;/a&gt;&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>9000. ECRD 2005 in Luxembourg</title>
		<link>http://www.rare-diseases.eu/2010/ECRD-2005-in-Luxembourg</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/ECRD-2005-in-Luxembourg</guid>
		<dc:date>2009-10-29T16:33:36Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_2005</dc:subject>

		<description>Direct to www.rare-luxembourg2005.org

-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-2005-+" rel="tag"&gt;art_about_2005&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;Direct to &lt;a href=&quot;http://www.rare-diseases.eu/2005/&quot; target=&quot;_blank&quot; title=&quot;www.rare-diseases.eu/2005 - Open in a new window&quot;&gt;www.rare-luxembourg2005.org&lt;/a&gt;&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>8000. Documents for the press conference</title>
		<link>http://www.rare-diseases.eu/2010/Documents-for-the-press-conference</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Documents-for-the-press-conference</guid>
		<dc:date>2009-10-29T16:27:23Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_documents</dc:subject>

		<description>This page contains the documents for the media. &lt;br /&gt;Click on the links bellow to open the documents: coming soon.


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-documents-+" rel="tag"&gt;art_about_documents&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains the documents for the media.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;p&gt;Click on the links bellow to open the documents: coming soon.&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>


﻿
	<item>
		<title>7000. Register to our mailing list</title>
		<link>http://www.rare-diseases.eu/2010/Register-to-our-mailing-list</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Register-to-our-mailing-list</guid>
		<dc:date>2009-10-29T16:18:47Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_mailing</dc:subject>

		<description>This page contains the information form for the mailing list. If you wish to receive more information on rare diseases and Eurordis activities, please register to the mailing list. &lt;br /&gt;Your registration to the mailing list signifies your acceptance to the record of your personal contact details. &lt;br /&gt;To register to the mailing list and receive the latest information about the Conference or Eurordis Newsletter, please fill-in the form below. &lt;br /&gt;Fields marked with an asterix (*) are mandatory. (...)


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-mailing-+" rel="tag"&gt;art_about_mailing&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains the information form for the mailing list. If you wish to receive more information on rare diseases and Eurordis activities, please register to the mailing list.&lt;/p&gt; &lt;p&gt;Your registration to the mailing list signifies your acceptance to the record of your personal contact details.&lt;/p&gt; &lt;p&gt;To register to the mailing list and receive the latest information about the Conference or Eurordis Newsletter, please fill-in the form below.&lt;/p&gt; &lt;p&gt;Fields marked with an asterix (*) are mandatory.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;h2&gt;Inscription to the mailing list&lt;/h2&gt; &lt;form action=&quot;http://www.rare-diseases.eu/2010/spip.php?page=backend&amp;id_rubrique=1&quot; method=&quot;post&quot; name=&quot;frmmaj&quot; target=&quot;_self&quot; &gt; &lt;input type=&quot;hidden&quot; name=&quot;op&quot; value=&quot;EURORDIS&quot; /&gt; &lt;fieldset&gt; &lt;legend&gt;Fields marked with an asterix (*) are mandatory.&lt;/legend&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_name&quot; &gt;First Name&lt;span class=&quot;rouge&quot;&gt;*&lt;/span&gt;&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_name&quot; type=&quot;text&quot; id=&quot;frm_name&quot; value=&quot;Access key:8&quot; accesskey=&quot;8&quot; onfocus=&quot;if (this.value=='Access key:8') this.value='';&quot; /&gt; &lt;br /&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_firstname&quot; &gt;Family Name&lt;span class=&quot;rouge&quot;&gt;*&lt;/span&gt;&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_firstname&quot; type=&quot;text&quot; id=&quot;frm_firstname&quot; value=&quot;Family Name&quot; onfocus=&quot;if (this.value=='Family Name') this.value='';&quot; /&gt; &lt;br /&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_companyname&quot; &gt;Organisation&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_companyname&quot; type=&quot;text&quot; id=&quot;frm_companyname&quot; value=&quot;Organisation&quot; onfocus=&quot;if (this.value=='Organisation') this.value='';&quot; /&gt; &lt;br /&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_city&quot; &gt;City&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_city&quot; type=&quot;text&quot; id=&quot;frm_city&quot; value=&quot;City&quot; onfocus=&quot;if (this.value=='City') this.value='';&quot; /&gt; &lt;br /&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_country&quot; &gt;Country&lt;span class=&quot;rouge&quot;&gt;*&lt;/span&gt;&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_country&quot; type=&quot;text&quot; id=&quot;frm_country&quot; value=&quot;Country&quot; onfocus=&quot;if (this.value=='Country') this.value='';&quot; /&gt; &lt;br /&gt; &lt;label class=&quot;form_gauche&quot; for=&quot;frm_email&quot; &gt;Email&lt;span class=&quot;rouge&quot;&gt;*&lt;/span&gt;&lt;/label&gt; &lt;input class=&quot;form_droit&quot; name=&quot;frm_email&quot; type=&quot;text&quot; id=&quot;frm_email&quot; value=&quot;Email&quot; onfocus=&quot;if (this.value=='Email') this.value='';&quot; /&gt; &lt;/fieldset&gt; &lt;input class=&quot;texte_submit&quot; type=&quot;submit&quot; name=&quot;submit&quot; id=&quot;submit&quot; value=&quot;Save&quot; /&gt; &lt;/form&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>6000. Disclaimers</title>
		<link>http://www.rare-diseases.eu/2010/Disclaimers</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Disclaimers</guid>
		<dc:date>2009-10-29T15:58:14Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_disclaimers</dc:subject>

		<description>This page contains disclaimers regarding privacy policy, terms of registration, website, record retention, photographs, conference etiquette, refund policy, and content review. &lt;br /&gt;Privacy policy &lt;br /&gt;We are committed to protecting your privacy. The information that you give us will only be used by the Conference organiser Grupa A05 and Eurordis, beyond that we will not share ANY of the information that you give us as an individual to any other third party without seeking your prior consent. The (...)


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-disclaimers-+" rel="tag"&gt;art_about_disclaimers&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains disclaimers regarding privacy policy, terms of registration, website, record retention, photographs, conference etiquette, refund policy, and content review.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;h2&gt;Privacy policy&lt;/h2&gt;
&lt;p&gt;We are committed to protecting your privacy. The information that you give us will only be used by the Conference organiser Grupa A05 and Eurordis, beyond that we will not share ANY of the information that you give us as an individual to any other third party without seeking your prior consent. The information we collect falls into two categories:&lt;/p&gt; &lt;ul&gt; &lt;li&gt;individual information&lt;/li&gt; &lt;li&gt;statistical information&lt;/li&gt;
&lt;/ul&gt;
&lt;h3&gt;Individual information&lt;/h3&gt;
&lt;p&gt;The individual information we collect, such as your email address and information provided by you through online forms, enables us to:&lt;/p&gt; &lt;ul&gt; &lt;li&gt;email you with information you may find useful; and&lt;/li&gt; &lt;li&gt;process your requests for information, Conference registration, publications and press releases.&lt;/li&gt;
&lt;/ul&gt;
&lt;p&gt;Notice of participant lists - Waiver in writing&lt;/p&gt; &lt;p&gt;There will be a participants list published. All participants will be included unless a written waiver is received by the conference organisers. You may wish to receive additional information relating to our work by email/electronic newsletter, e.g. we may inform you about other conferences and workshops in the field of rare diseases, or when a training course is going to take place. To obtain this information, please register to the mailing list.&lt;/p&gt; &lt;h3&gt;Unsubscribing from email/mailings&lt;/h3&gt;
&lt;p&gt;If you have registered to receive our newsletter but would now prefer not to receive email or any other communications from us, please let us know by removing your address from the mailing list (the appropriate option is available in the Newsletter area).&lt;/p&gt; &lt;h3&gt;Data Protection&lt;/h3&gt;
&lt;p&gt;If you require any of your personal information or that of your organisation to be removed from our systems or website please contact us by email (on &lt;a href=&quot;mailto:secretariat@rare-diseases.eu &quot;&gt;secretariat@rare-diseases.eu&lt;/a&gt;) remembering to give your full name and address.&lt;/p&gt; &lt;h3&gt;Statistical information&lt;/h3&gt;
&lt;p&gt;We also collect statistical information such as the number of visitors to our site, the number of times a page is viewed and the number and type of files that are downloaded from our site etc. From this information we can identify which parts of the site are the most/least popular. This information does not enable us to personally identify any individual user.&lt;/p&gt; &lt;p&gt;For the purpose of our web survey, the information you provide will enable us to update and adjust the content of our site to better fulfil your needs.&lt;/p&gt; &lt;h3&gt;Questions and Comments&lt;/h3&gt;
&lt;p&gt;If you have any questions or comments about our privacy policy, please email the Conference Secretariat on &lt;a href=&quot;mailto:secretariat@rare-diseases.eu &quot;&gt;secretariat@rare-diseases.eu &lt;/a&gt;&lt;/p&gt; &lt;h3&gt;Statement of Liability Waiver - Terms of Registration&lt;/h3&gt;
&lt;p&gt;The Conference organisers waive any liability for the acts of any outside entities related to this event. We have no responsibility in relation to the safety of any delegate to or from this Conference. We will accept no liability for delays or failure to perform resulting from anything beyond our control.&lt;/p&gt; &lt;p&gt;We reserve the right to cancel this Conference without penalty other than a refund of direct costs paid to us for services not provided. Everyone in attendance will be responsible for their own behaviour. The organisers will accept no responsibility for the behaviour of any attendee or outside entity during the event.&lt;/p&gt; &lt;p&gt;Attendees are asked to present a Photo ID at registration in order to ensure the identity of the registrant.&lt;/p&gt; &lt;h2&gt;Website disclaimer&lt;/h2&gt;
&lt;p&gt;The Conference organisers maintain this web site with the purpose of enhancing public access to information about the European Conference on Rare Diseases. It is our intention and goal to keep this information as timely and accurate as possible. If errors are brought to our attention, we will try to correct them.&lt;/p&gt; &lt;p&gt;However the organisers cannot guarantee, and makes no warranties as to, the accuracy, integrity and timeliness of this information. The Conference organisers assume no liability or responsibility for any errors or omissions in the content of this site and further disclaims any liability of any nature for any loss whatsoever caused in connection with using the information on this site.&lt;/p&gt; &lt;p&gt;The organisers may change the information on this site at any time without prior notice. Hyperlinks to external sites or sources are provided for convenience only. The Conference organisers assume no responsibility for, nor approval of, information contained in those external sites.&lt;/p&gt; &lt;p&gt;It is our goal to minimise disruption caused by technical errors. However, we cannot guarantee that our service will not be interrupted or otherwise affected by technical problems. The Conference organisers accept no responsibility with regard to such problems incurred as a result of using this site or any linked external sites. This disclaimer is not intended to contravene any requirements laid down in applicable national law nor to exclude liability for matters which may not be excluded under that law.&lt;/p&gt; &lt;h2&gt;Record retention&lt;/h2&gt;
&lt;p&gt;The following records will be retained for a minimum of 5 years:&lt;/p&gt; &lt;ul&gt; &lt;li&gt;Programme outlines and printed materials&lt;/li&gt; &lt;li&gt;Participation lists&lt;/li&gt; &lt;li&gt;Dates and locations of events&lt;/li&gt; &lt;li&gt;Results of conference evaluations&lt;/li&gt; &lt;li&gt;List of speakers and chair persons&lt;/li&gt;
&lt;/ul&gt;
&lt;h3&gt;Photographs&lt;/h3&gt;
&lt;p&gt;The organisers reserve the right to use any photos taken at the Conference. They may be used in conference materials, appearing either in printed documents or in related web sites. Your consent of this condition is appreciated and will assist in the promotion of future events. Your registration to this event signifies your acceptance of the terms and conditions of these policies.&lt;/p&gt; &lt;h3&gt;Refund Policy&lt;/h3&gt;
&lt;p&gt;All cancellations will be charged a 25&#8364; processing fee. With a WRITTEN notification postmarked, faxed or e-mailed by &lt;font color=&quot;#9d104e&quot;&gt;13 April 2010&lt;/font&gt;, you will be issued a full refund less the processing fee. If notification is received after &lt;font color=&quot;#9d104e&quot;&gt;13 April 2010&lt;/font&gt;, a 50% refund will be issued less the processing fee.&lt;/p&gt; &lt;h3&gt;Conference Etiquette&lt;/h3&gt;
&lt;p&gt;In deference to all in attendance, please follow these guidelines:&lt;/p&gt; &lt;p&gt;With respect for the speakers and those in attendance, please silence any pagers and cell phones. We will frown upon any ring tones during the event. In addition, all conversations unrelated to the conference should wait until breaks or lunch to avoid any distractions for your fellow attendees.&lt;/p&gt; &lt;p&gt;Keep in mind, some in attendance may have certain sensitivities to chemicals or scented products. If you must wear or use these scented products, do so in moderation as a courtesy to everyone in attendance.&lt;/p&gt; &lt;h3&gt;Content Review&lt;/h3&gt;
&lt;p&gt;All content will be reviewed by the conference chair prior to each event. This review will ensure all presentations are technically accurate.&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>4000. Services for people with disabilities</title>
		<link>http://www.rare-diseases.eu/2010/Services-for-people-with</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Services-for-people-with</guid>
		<dc:date>2009-10-29T15:24:58Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_services_disabilities</dc:subject>

		<description>This page contains information on services for people with disabilities. &lt;br /&gt;This website has been validated for accessibility. &lt;br /&gt;Please adapt the screen mode to your needs. &lt;br /&gt;For local transportation and other specific needs, a local organising committee will be pleased to help you. Please contact the conference organisers: &lt;br /&gt;Kasia Peala &lt;br /&gt;secretariat@rare-diseases.eu &lt;br /&gt;Tel: + 33 1 56 53 52 63 &lt;br /&gt;Or the local event organiser office: &lt;br /&gt;Grupa A05 &lt;br /&gt;Grupa A-05 Sp. z o.o. &lt;br /&gt;31-101 Krakow, Poland &lt;br /&gt;Pl. (...)


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-services-disabilities-+" rel="tag"&gt;art_about_services_disabilities&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains information on services for people with disabilities.&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;p&gt;This website has been validated for accessibility.&lt;/p&gt; &lt;p&gt;Please adapt the screen mode to your needs.&lt;/p&gt; &lt;p&gt;For local transportation and other specific needs, a local organising committee will be pleased to help you. Please contact the conference organisers:&lt;/p&gt; &lt;p&gt;&lt;strong&gt;Kasia Peala &lt;/strong&gt;&lt;br /&gt;
&lt;a href=&quot;mailto:secretariat@rare-diseases.eu &quot;&gt;secretariat@rare-diseases.eu &lt;/a&gt;&lt;br /&gt;
Tel: + 33 1 56 53 52 63&lt;/p&gt; &lt;p&gt;Or the local event organiser office:&lt;/p&gt; &lt;p&gt;&lt;strong&gt;Grupa A05&lt;/strong&gt;&lt;br /&gt;
Grupa A-05 Sp. z o.o. &lt;br /&gt;
31-101 Krakow, Poland &lt;br /&gt;
Pl. Na Groblach 14/2 &lt;br /&gt;
P. +48 12 429 62 23 &lt;br /&gt;
F. +48 12 429 62 87 &lt;br /&gt;
E: &lt;a href=&quot;mailto:info@a05.pl&quot;&gt;info@a05.pl&lt;/a&gt;&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>



	<item>
		<title>3000. How to go to Krakow</title>
		<link>http://www.rare-diseases.eu/2010/Conference-venue-floor-plan-and</link>
		<guid isPermaLink="true">http://www.rare-diseases.eu/2010/Conference-venue-floor-plan-and</guid>
		<dc:date>2009-10-29T15:21:31Z</dc:date>
		<dc:format>text/html</dc:format>
		<dc:language>en</dc:language>
		


		<dc:subject>art_about_floor_plan</dc:subject>

		<description>This page contains information on how to go to Krakow &lt;br /&gt;If you need assistance to organise your stay before or after the conference, e.g. find accommodation or plan a week end in Poland, Grupa A05 can advise you. Contact Grupa A05 at: &lt;br /&gt;Grupa A-05 Sp. z o.o. &lt;br /&gt;31-101 Krakow, Poland &lt;br /&gt;Pl. Na Groblach 14/2 &lt;br /&gt;P. +48 12 429 62 23 &lt;br /&gt;F. +48 12 429 62 87 &lt;br /&gt;E: info@a05.pl &#160; Poland &lt;br /&gt;Poland is situated in the heart of Europe, at a crossing of roads and cultures. Its boundaries are formed by the Baltic Sea to (...)


-
&lt;a href="http://www.rare-diseases.eu/2010/-About-the-conference-" rel="directory"&gt;4000. About the conference&lt;/a&gt;

/ 
&lt;a href="http://www.rare-diseases.eu/2010/+-art-about-floor-plan-+" rel="tag"&gt;art_about_floor_plan&lt;/a&gt;

		</description>


 <content:encoded>&lt;div class='rss_chapo'&gt;&lt;p&gt;This page contains information on how to go to Krakow&lt;/p&gt;&lt;/div&gt;
		&lt;div class='rss_texte'&gt;&lt;h4&gt;If you need assistance to organise your stay before or after the conference, e.g. find accommodation or plan a week end in Poland, Grupa A05 can advise you. Contact Grupa A05 at:&lt;/h4&gt;
&lt;p&gt;Grupa A-05 Sp. z o.o.&lt;br /&gt;
31-101 Krakow, Poland&lt;br /&gt;
Pl. Na Groblach 14/2&lt;br /&gt;
P. +48 12 429 62 23&lt;br /&gt;
F. +48 12 429 62 87&lt;br /&gt;
E: &lt;a href=&quot;mailto:info@a05.pl&quot;&gt;info@a05.pl&lt;/a&gt;&lt;/p&gt; &lt;h3&gt;&#160;&lt;/h3&gt;
&lt;h2&gt;Poland&lt;/h2&gt;
&lt;p&gt;Poland is situated in the heart of Europe, at a crossing of roads and cultures. Its boundaries are formed by the Baltic Sea to the North; Germany to the West, the Czech and Slovak Republics to the South; Ukraine, Belarus, Lithuania and Russia to the East. The great country strives to meet the needs and interests of any profession and any group. Poland is close - easily accessible from all parts of the world by air, by car, coach and train. It offers excellent hotels, affordable prices and good services. Ten years ago it was unthinkable, but today this area is not just back in Europe, it is the centre of its vitality, able at last to display the landscapes, architecture and culture which are the heritage of a reunited continent. &lt;br /&gt;
Poland lies in the zone of moderate climate, intermediate between the marine and continental climates and the weather can be quite changeable. In May the temperature ranges 15oC to 25oC. The entire of Poland lies in Central European Time.&lt;br /&gt;
Money - euro rate: 1,00 euro = ca 4,00 z&#322;. Paying by credit cards is widely acceptable. Cash machines (bankomats) are available all over the country.&lt;/p&gt; &lt;h1&gt;Krakow&lt;/h1&gt;
&lt;p&gt;Krakow - the capital of Ma&#322;opolska - the Southern region of Poland. The over onethousand-year history of the city which was the capital of Poland from 11th to 17th century, medieval town plan with the largest Main Market in Europe, the oldest Polish university - the Jagiellonian University, churches and cathedrals, magnificent collections and museums, the Salt Mine in Wieliczka - all this contributes to the uniqueness of the city which is listed on the Unesco World Heritage List amongst just 12 other objects. &lt;br /&gt;
In the year 2000, Krakow proudly handled the title of the European City of Culture granted by the Council of Ministers of the European Union. Cracow is said to be a magical city. This magic is hidden in precious collections in more than 43 museums, great artistic events and festivals. It is in the incredible atmosphere of cafes, restaurants, pubs vibrating with life in the Old Town, as well as in the fashionable Jewish district.&lt;/p&gt; &lt;h2&gt;How to get to Cracow&lt;/h2&gt;
&lt;h3&gt;By plane&lt;/h3&gt;
&lt;p&gt;By plane - Krakow-Balice, also known as John Paul II International Airport, is 18km from the centre. There are flights from and to: United Kingdom, Germany, France, Italy, Spain, The Netherlands, Norway, Czech, Austria, Switzerland, USA and Israel. Getting to town from the airport: a taxi ride should cost 50 - 100 z&#322;, depending on the address.&lt;br /&gt;
Webpage: &lt;a href=&quot;http://www.lotnisko-balice.pl&quot;&gt;www.lotnisko-balice.pl&lt;/a&gt;&lt;/p&gt; &lt;p&gt;The get to the city centre from Krakow - Balice airport you may call a taxi, take a train or a bus. Details are available on the airport webpage: http://www.krakowairport.pl/en/60/4/176/Access-to-the-airport&lt;br /&gt;
Ca. 100 km from Krakow there is another International Airport Katowice-Pyrzowice. Webpage:&lt;a href=&quot;http://www.katowice-airport.pl&quot;&gt; www.katowice-airport.pl&lt;/a&gt;&lt;/p&gt; &lt;h2&gt;Save up to 20% on your travel expenses with the Star Alliance Network! Click &lt;a href=&quot;http://www.rare-diseases.eu/2010/#Star_Alliance&quot;&gt;here&lt;/a&gt;&lt;/h2&gt;
&lt;p&gt;&#160;&lt;/p&gt; &lt;h3&gt;By train&lt;/h3&gt;
&lt;p&gt;By train - the main railway station (Dworzec Glowny) is conveniently situated at the northern part of the Old Town and trains from Germany, Hungary, Ukraine, the Czech Republic, plus many Polish cities, arrive here. There are several daily express and fast train services from Warsaw to Krakow and vice versa. Booking of seats is recommended. Webpage: &lt;a href=&quot;http://www.pkp.pl&quot;&gt;www.pkp.pl&lt;/a&gt;&lt;/p&gt; &lt;h3&gt;By car&lt;/h3&gt;
&lt;p&gt;By car - Krakow has direct access to the international motorways A4 (2 x 8,00 z&#322; toll is paid when you enter and exit the motorway). Roads in Poland are marked with international traffic signs, and traffic regulations are similar to those in effect in other European countries.&lt;br /&gt;
and traffic regulations are similar to those in effect in other European countries.&lt;/p&gt; &lt;h2&gt;&lt;a name=&quot;Star_Alliance&quot;&gt;Save up to 20% on travel with the Star Alliance network!&lt;/a&gt;&lt;/h2&gt;
&lt;p&gt;The &lt;font color=&quot;#9d104e&quot;&gt;Star Alliance&#8482; Members Airlines&lt;/font&gt; are pleased to be appointed as the Official Airline Network for the 5th European Conference on Rare Diseases ECRD 2010 in Krakow.&lt;br /&gt;
&lt;br /&gt;
To obtain the &lt;font color=&quot;#9d104e&quot;&gt;Star Alliance&#8482;&lt;/font&gt; Conventions Plus discounts, please call the reservation office of a participating Star Alliance Member Airline and quote the following Convention &lt;font color=&quot;#9d104e&quot;&gt;Code LO02S10&lt;br /&gt;
&lt;/font&gt;&lt;br /&gt;
Registered participants plus one accompanying person travelling to the event are automatically granted a discount of up to 20%, depending on fare and class of travel booked.&lt;br /&gt;
&lt;br /&gt;
The participating airlines for this event are: &lt;br /&gt;
LOT Polish Airlines, Turkish Airlines, South African Airways, Scandinavian Airlines, bmi, Brussels Airlines, Air Canada, TAP Portugal, United, ANA, Asiana Airlines, Air China, SWISS International Air Lines, THAI, Lufthansa, EgyptAir, Austrian Airlines, Spanair, Croatia Airlines.&lt;br /&gt;
&#160;&lt;br /&gt;
For booking office information please visit:&lt;br /&gt;
www.staralliance.com/conventionsplus &lt;br /&gt;
&lt;br /&gt;
Discounts are offered on published business and economy class fares, excluding website/internet fares, senior and youth fares, group fares and Round the World fares.&lt;br /&gt;
&lt;br /&gt;
Please note: For travel from Japan and New Zealand special fares or discounts are offered by the participating airlines on their own network.&lt;br /&gt;
&lt;br /&gt;
When making your travel plans please present confirmation of your registration or proof of attendance.&lt;/p&gt; &lt;p&gt;&lt;img height='80' border=&quot;0&quot; align=&quot;textTop&quot; width='300' src=&quot;http://www.rare-diseases.eu/2010/IMG/Image/COR4-V1-B-NewTag.jpg&quot; alt=&quot;Logo Star Alliance&quot; style='height:80px;width:300px;' /&gt;&lt;/p&gt; &lt;h1&gt;&#160;&lt;/h1&gt;
&lt;h1&gt;&#160;&lt;/h1&gt;
&lt;h1&gt;Useful Links&lt;/h1&gt;
&lt;p&gt;&lt;a href=&quot;http://www.krakow.pl&quot;&gt;www.krakow.pl useful information about Krakow&lt;/a&gt;&lt;br /&gt;
&lt;a href=&quot;http://www.cracow-life.com&quot;&gt;www.cracow-life.com useful information about Krakow&lt;/a&gt;&lt;br /&gt;
&lt;a href=&quot;http://www.lotnisko-balice.pl&quot;&gt;www.lotnisko-balice.pl - Krakow airport&lt;/a&gt;&lt;br /&gt;
&lt;a href=&quot;http://www.katowice-airport.pl&quot;&gt;www.katowice-airport.pl - Katowice Airport&lt;/a&gt;&lt;br /&gt;
&lt;a href=&quot;http://www.pkp.pl&quot;&gt;www.pkp.pl - national railways&lt;/a&gt;&lt;br /&gt;
&lt;a href=&quot;http://www.intercity.pl&quot;&gt;www.intercity.pl - intercity trains&lt;/a&gt;&lt;/p&gt;&lt;/div&gt;
		
		</content:encoded>


		

	</item>





</channel>

</rss>
