European Conference on Rare Diseases - Lisbon November 27 - 28th 2007

The workshop will allow those who would like to create or develop a help line at their respective associations, the opportunity to receive first hand advice on how to go about it.

The speakers, all networks participants of Rapsody, aim to present to the audience the broad range of services on offer and highlight some of the common challenges that can be addressed at European level. 

The workshop will begin at 13:30 and finish at 17:30.

Places will be offered on a first come, first served basis. The workshop is limited to 40 participants, so please react promptly!

It will take place at the:

Room Geneva
Marriott Lisbon**** Hotel
45 ave dos Combatentes
Phone: 351 21 7235400
Fax: 351 21 7264281

Programme: 

13:30 - 14:00 Pamela Davies(Climb, UK)

14:00 - 15:15 Marie Claude Bergman (Maladies Rare Info Services, France) with Vanesa Pizarro (SIO, Spain), Christina Greek Winald (National Information Centre for Rare Diseases, Sweden) 

Typology of calls (reasons for calling, responses given: different approaches, different aims)

Debate/questions