European Conference on Rare Diseases - Lisbon November 27 - 28th 2007
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This page contains summaries of the presentation for the category "Addressing all patient needs, beyond medical care" as well as links to the documents.
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François Houÿez (Europe)
Therapeutic Recreation Programmes
Pamela Davies (United Kingdom)
Rare Diseases Help Lines
Shane Lynam (Europe)
Fighting Isolation for very Rare Disease Patients
Cécile Meadel (France)
The role of online communities for people living with a rare disease
Dr Brigitte Soudrie (France)
Respite Care - so that patients and their carers can have a break from daily routine
Dr Postel-Vinay (France)
Rare Diseases at School
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